Thank you very much for visiting my fundraising page.
When the CDLS Foundation UK put out a request for London marathon runners I was very pleased and extremely excited to be given this opportunity to support the charity in such a world class event- I can't believe that I will be treading the same ground (even if a few hours behind!) as the likes of Paula Radcliffe!! I have spent the last three years doing my PhD with a team of researchers working with people with rare genetic syndromes including Cornelia de Lange syndrome. It is this experience that has led me to want to support the CDLS Foundation UK in any way I can.
The Cornelia de Lange syndrome Foundation UK is a support group for people with CDLS, their parents, carers and families. CDLS causes people to suffer from a huge number of difficulties in their every day lives. People often have a weak muscle around the top of their stomach, meaning that they can be in constant pain becuase of acid coming up from the tummy. This constant pain is particularly challenging for people with CDLS because they often find it difficult to communicate to others that they are in pain. This is just one example of the difficulties that people with CDLS regularly face.
I have been truly inspired by the commitment, optimism and enthusiasm of all of the families of people with CDLS that I have met. Because the syndrome is rare, families often have to fight to get access to appropriate health, medical and education services. It is very difficult for professionals working with people with CDLS (and I include myself in this description) to understand the true extent of the difficulties faced by people with CDLS and their families. This is why the CDLS Foundation UK is so important. It is a support group for families of people with CDLS that is run by the families of people with CDLS. So all of the support provided is given exactly where, when and how it is needed.
The CDLS Foundation UK provide support to people with CDLS and their families in many important ways. Regular family meetings help to provide parents and carers with the most up to date information about how best to manage some of the difficulties associated with the syndrome. Social support outings help to introduce individuals with CDLS to new friends and new social experiences. Global conferences help to increase knowledge of the syndrome on a large scale and encourage communication and collaboration between professionals working with people with CDLS. The foundation also produces a regular news letter to keep people continually up to date with recent research and relevant issues.
Please click here for more information on The CDLS Foundation UK.
Please visit my homepage for more information on my involvement in working with individuals with rare genetic syndromes.
If you would like to sponsor me to run the London Marathon, donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Cornelia de Lange Syndrome Foundation UK gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.
I really appreciate your support.
Kate
Raised:
64%
Raised so far: £969.43
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Donation by Anonymous on 03/07/09 |
£10.00 |
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From the very kind off-line donators Donation by Kate Woodcock on 02/07/09 |
£110.00 |
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Hello Kate this donation is from Chris Noakes and Mrs Rees via Gran Gladys. We all say very, very, well done Kate !!! Donation by Penny Woodcock on 21/06/09 |
£10.00 |
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well done kate, a friend of your dads Donation by alf clarke on 06/05/09 |
£5.00 |
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Well Done Kate ! Donation by Sheila & Martin Francome on 06/05/09 |
£10.00 + £2.82 Gift Aid |
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Better late than never! Well done Kate - fantastic stuff. Donation by Laurie on 02/05/09 |
£5.00 + £1.41 Gift Aid |
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I am so glad you did it! and quicker than you were hoping. Was great to watch + see you on your way round. Congratulations I knew you would do it! :) Donation by Emma W on 02/05/09 |
£26.40 + £7.45 Gift Aid |
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I always wait until after the event to cough up... Donation by Harriet on 29/04/09 |
£10.00 + £2.82 Gift Aid |
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MANY CONGRATULATIONS FROM THE WESTBURY/ EASTGATE TEAM Donation by EASTGATE HOME IMPROVEMENTS on 28/04/09 |
£100.00 + £28.21 Gift Aid |
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Hope you achieved the time you wanted and now you can have a lie in on Sunday mornings! xxx Donation by Gemma and Scott Malone on 26/04/09 |
£10.00 + £2.82 Gift Aid |
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Good luck Donation by James B on 25/04/09 |
£10.00 + £2.82 Gift Aid |
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Good luck! Donation by Becki Brown & Rich Talbot on 24/04/09 |
£5.00 + £1.41 Gift Aid |
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Run Kate run, I'll try and spot you on the TV. Good Luck xx Donation by Joanna Branson on 24/04/09 |
£10.00 + £2.82 Gift Aid |
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Good luck Kate xx Donation by Ron on 20/04/09 |
£15.00 + £4.23 Gift Aid |
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All the best :) have fun Donation by Scott A G Hartle on 20/04/09 |
£5.00 |
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Good luck! Donation by Karen Kings on 20/04/09 |
£5.00 |
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Impressive! Donation by Sarah Beck on 20/04/09 |
£10.00 + £2.82 Gift Aid |
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Donation by Leigh on 20/04/09 |
£20.00 + £5.64 Gift Aid |
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Good luck Kate!x Donation by Sarah on 20/04/09 |
£10.00 + £2.82 Gift Aid |
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Good Luck Kate Donation by Lynne & Tony on 18/04/09 |
£10.00 |
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Only two weeks to go! Hope you enjoy every second of it! Will be thinking of you (and will be there in spirit!) - Love Rach x Donation by Rachel on 13/04/09 |
£26.00 + £7.33 Gift Aid |
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Go girl go! I know you can do it! x Donation by Clare on 07/04/09 |
£10.00 + £2.82 Gift Aid |
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Good Luck!! Donation by Leah on 01/04/09 |
£10.00 + £2.82 Gift Aid |
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"You go girlfriend!" It'll be easier than a transect through the Tanzanian forest!! Donation by Matt Fossey on 31/03/09 |
£10.00 |
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If anyone can do it, you can do it!! Good luck (not that you need of course)! Donation by Lisa Colllis on 23/03/09 |
£10.00 |
| * Total raised online: | £912.43 |
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| Offline donations: | £57.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £969.43 |
| Gift Aid plus supplement: | £192.47 |
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