The Myelin Project is a non-profit charity, which funds research to find treatment and cures for demyelinating diseases, such as Multiple Sclerosis (MS) and the Leukodystrophies. These are devastating illnesses that affect both adults and children, there are no known cures for these diseases. All money raised goes direct to research.
My team-mate Dave and I, will race the Cape Epic Mountain Bike Race in South Africa on 21 – 28 March and cover 743 kilometres, including 16,650 metres of climbing over gruelling mountains and passes. Our team is called Epic4Joe and we're raising money for The Myelin Project UK who fund research into finding treatment and cures for the Leukodystrophies and Multiple Sclerosis.
Our little friend, Joseph Swift (attached pic), has a rare form of Leukodystrophy and we met him last year at Ironman Zurich where his Dad raced and raised money and awareness via tri4joe.com We were taken by Joseph and the efforts his parents were going to. When the opportunity came up for us to do the Cape Epic event, we thought of Joseph and hence the team name: Epic4Joe.
Joseph's form of Leukodystrophy leaves him with very little control of any muscle in his body. He cannot sit up, roll, stand up, walk, talk...so many of the things that we all take for granted. His condition is degenerative and progressive and there is no treatment or cure. Hopefully with our help, more money will be spent on researching and finding some treatment and ultimately, a cure.
Joseph goes through his own epic every day, so here's where we do our bit for him and the many others like him.
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor us: The British Trust for The Myelin Project gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.
So please sponsor us now! Thank you in advance for your support. Mark and Dave
Wish I was joining both you fellas! Best of luck and don't forget to pack lots cream for the 'special' places. Looking fwd to the video diaries tooDonation by Mike Robertson
on
25/02/09
£150.00+ £42.31 Gift Aid
Rather more worthy than your 2002 Cape Experience, although I think that required some endurance too...Good luck!Donation by Tania & Ben
on
24/02/09
£25.00
Wouldn't it be easier to drive it? Seriously, good luck Mark, a worthy cause. Donation by Steve Hodder
on
24/02/09
£50.00+ £14.10 Gift Aid
Great cause, dont forget your packed lunch and a bike pump. Donation by Robert Mills
on
24/02/09
£100.00
10p a kilometer... Keep pushing hard, every kilometer counts! Good Luck to you both, You're Hero's already! XDonation by Penny Lawn
on
23/02/09
£74.30+ £20.96 Gift Aid
Its going to be some tea break to cover 8 days of racing. Hope you enjoy an amazing experience.Donation by Michael Widera
on
23/02/09
£20.00+ £5.64 Gift Aid
17k vertically - outstanding effort for a great cause.Donation by Mike Lloyd
on
23/02/09
£50.00+ £14.10 Gift Aid
Donation by Rudi Dosanjh
on
23/02/09
£50.00+ £14.10 Gift Aid
Good luck with this effort to help a good cause. I hope that the training makes the event doable.Donation by Humphrey
on
23/02/09
£25.00+ £7.05 Gift Aid
Best of luck - make sure you've got some good paded pants for all those milesDonation by Anthony
on
19/02/09
