Story

Edit:

Thanks so much to everyone who sponsored me. I managed to run for the full 24 hours and covered 82 miles in total. It was incredibly hard but the sponsorship money you gave to ASSERT and all your kind words kept me going! I can confirm that no chips were eaten but I was significantly delayed by the heat, leg pain and the consumption of three bags of strawberry laces!

Thank you once again for sponsoring me, the money you have given will make a big difference to ASSERT.

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Hi and thanks for visiting my fundraising page. As most of you know I am currently in my first year of a PhD at the Cerebra Centre for Neurodevelopmental Disorders. My research focuses on sociability and behaviour in Angelman syndrome. Angelman syndrome is a rare genetic disorder that affects approximately 1 in 20,000 people and is associated with both a physical and cognitive disability. As Angelman syndrome is so rare, this can make it difficult for families and professionals to get information about the syndrome. The Angelman Syndrome Support Education and Research Trust (ASSERT) provide information and support to individuals and families living with Angelman Syndrome. In addition, ASSERT arranges and funds a national conference for families every two years. Please visit http://www.angelmanuk.org/ for more information.
 
In July I will be running in a 24 hour race to raise money for ASSERT. The race is made up of a 10k loop which I try and run as many times as I can in 24 hours without stopping. I hope to run about 100 miles, but this is dependant on how many times I stop to eat chips!
 
I really hope you can sponsor me. Even a small amount will make a difference.
 
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to ASSERT and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
 
Thank you!
 
Mary

 

Raising money for

Angelman Syndrome Support Education & Research Trust

Angelman Syndrome Support Education & Research Trust

Charity Registration No. 1021882

Assert is a United Kingdom based support group for those affected by the rare genetic condition Angelman Syndome (AS). A diagnosis of AS will have life changing consequences and we are there to help families cope. We also advise medical and care professionals dealing with this rare condition.

Donations 55

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Donation by Jack & Becky on 10/08/11

£25.00

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Congratulations! x

Donation by Anonymous on 03/08/11

£10.00

+ £2.50 Gift Aid

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Donation by Jessica Tanner on 01/08/11

£10.00

+ £2.50 Gift Aid

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Well done MAry we are so proud of you. Love J and M

Donation by margaret heald on 31/07/11

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well done Mary!!!! very very proud of you. xxx

Donation by Grandma Molly on 31/07/11

£20.00

+ £5.00 Gift Aid

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Good luck today Mary!!! Will see you in September. Love from Darren and Katie xx

Donation by Darren Bullock on 30/07/11

£10.00

+ £2.50 Gift Aid

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Good Luck Mary! I think you're fab for doing this, hope you can imagine a big plate of chips at the end to get you through, love Charlotte and Dale xx

Donation by Charlotte Clark on 27/07/11

£10.00

+ £2.50 Gift Aid

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From Grandma

Donation by Mrs E Ormond on 26/07/11

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Good Luch Mary xxx

Donation by Sue (Kate's Mum) on 26/07/11

£10.00

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MARY! you are crazy but what a great thing you are doing! very impressed and Good luck and let me know how you get on! love Emily & Andrew xxx

Donation by Emily Bullock on 26/07/11

£10.00

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Good luck :)

Donation by Becky Hardiman on 26/07/11

£10.00

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Most definitely impressed!! Best of luck!!!

Donation by Krupa Sheth on 26/07/11

£10.00

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Good Luck Mary! xx

Donation by Nicola Cutting on 25/07/11

£10.00

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All the best Mary Pam Appleby - 23/07/11

Donation by Pam Appleby on 23/07/11

£20.00

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Good luck Mary!

Donation by Lee Waite on 23/07/11

£10.00

+ £2.50 Gift Aid

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I'm so impressed with what you are doing! It's awesome! Good luck!

Donation by Jane Waite on 23/07/11

£10.00

+ £2.50 Gift Aid

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Good luck Mary!!

Donation by Vicky Quine on 22/07/11

£10.00

+ £2.50 Gift Aid

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Good luck Mary, you are one brave lady!

Donation by Louise Davies on 22/07/11

£10.00

+ £2.50 Gift Aid

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If you can survive early morning circuit training, this will be easy!! Good Luck!

Donation by Sophie Ruszczynski on 19/07/11

£20.00

+ £5.00 Gift Aid

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Go Mary! Good luck with the run, i'm sure you will do amazingly well :) xox

Donation by Rachel Carter on 18/07/11

£10.00

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Good luck Mary! And maybe I'll let you off climbing for a couple weeks afterwards :) x x x

Donation by Emma Clarkson on 07/07/11

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 05/07/11

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Go for it Mary you can do it with the support of Peter, Alfie and chips!! Din and Sal xxx

Donation by Lynne Rowling on 01/07/11

£40.00

+ £10.00 Gift Aid

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Good luck Marymoo!!! X x x

Donation by Jess Donohoe on 03/06/11

£20.00

+ £5.00 Gift Aid

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Good egg; keep up the good work hun.xxx

Donation by laura bratt on 23/05/11

Donation summary

  • * Online donations£1,173.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£1,173.00
  • Gift Aid£228.60

* Charities pay a small fee for our service. Find out how much it is and what we do for it.