My story

Millie has relapsed neuroblastoma. Her best hope for survival is a breakthrough therapy called ‘immunotherapy with antibody’. This is not currently available to Millie in the UK so the family need to spend 6 months in Germany in 2012 so Millie can get this treatment.

 

When Millie’s neuroblastoma came back, Nick and Coralynne were advised to start fundraising straight away for the £70,000 needed as they were warned that individual Primary Care Trusts (PCTs) rarely agree to fund the costs of children joining the clinical trial in Germany. Nick and Coralynne turned to the Neuroblastoma Children's Cancer Alliance UK for assistance.  

 

At the end of December, Nick and Coralynne received notification from their PCT advising that they will now fund the majority of Millie's treatment in Germany. Nick and Coralynne can't believe that the funding has been approved - to receive such a fast and positive decision is exceptional. Prior to asking for help, the family were advised that funding for this type of treatment would probably not be forthcoming for MIllie, hence the drive towards fund raising.

 

Although the PCT have agreed to fund the treatment in Germany, it is not clear when the funding will be made available to pay for the treatment. This is crucial as Millie must start her treatment by the end of January 2012, and in the rare cases PCT funding has been made available, it has been known to take months to come through. All the money that has been raised so far will allow Millie to start treatment when she needs it, as the German hospital will require payment in advance. The funds will also be used to cover any medical expenses Millie incurs that will not be paid for by the PCT. Any funds remaining after that will be kept for Millie, should further treatment be necessary in future.

 

Nick and Coralynne said, “We have been completely overwhelmed by people's generosity and the support from friends, family, colleagues and strangers alike - it is hard to put into words how grateful we are to everyone who has reached out to help Millie. However, we are conscious that our situation has changed since the appeal started and that people may have responded differently under these new circumstances. 


We hope that everyone will understand and appreciate why we started fundraising when we did to pay for Millie’s treatment costs - we were continuously told by neuroblastoma doctors and the people around us who had experience of children in this situation that PCT funding would not be forthcoming. As Millie’s parents, our sole motivation has always been to strive to do the right thing for our daughter.


While we are no longer actively fundraising, we realise that some fundraising events are planned for the New Year. We will leave the decision with the event organisers as to whether they go ahead and raise funds to assist Millie, and children like her, to get the help they need to try and become free from this terrible disease.


Once again, we thank you all for your fantastic support. 

 

Millie, Coralynne and Nick x”

My gallery 1

My Team

Team photo
Millie Cummins

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 714

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Donation by Wendy Blanton on 02/02/13

£150.00

+ £37.50 Gift Aid

Donation by Anna Linton on 10/09/12

£260.00

+ £65.00 Gift Aid

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Donation by St Margarets Parish Church on 24/07/12

£5.00

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Mr Colin Forrest

Donation by St Margarets Parish Church on 24/07/12

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Donation by Parker Hannifin, Dewsbury on 10/07/12

£207.00

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You are all in my prayers

Donation by Steve Kearns on 09/07/12

£70.00

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Donation by Brett Jenkins on 09/07/12

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Donation by Rick Goby on 09/07/12

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Donation by Mr & Mrs Adam Jamal on 09/07/12

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Donation by Friends of Jenny & Brian on 09/07/12

£924.33

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Donation by Miss Susan Armstrong on 09/07/12

£20.00

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Donation by Ian Lammason on 09/07/12

£10.00

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Donation by Sally Heilbutt on 09/07/12

£10.00

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Donation by FUNTECH on 09/07/12

£300.00

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Good Luck Daddy. Love to Millie. XXX

Donation by Mhae on 06/07/12

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Best Wishes for Sunday Tony. Millie, you are always in our thoughts - Love to you and your family. XXX

Donation by Chris & Alf Thomas on 06/07/12

£40.00

+ £10.00 Gift Aid

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Good Luck Daddy. I am proud of you for helping my friend Millie. Love to Millie. XXX

Donation by Misty on 06/07/12

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Good luck Tony

Donation by Rob Bourton on 04/07/12

£64.00

+ £16.00 Gift Aid

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All the best for Sunday Tony. God Bless Millie and Her Family. xxx

Donation by Locke Sinclair Family on 02/07/12

£20.00

+ £5.00 Gift Aid

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Love to Millie... From the autys and our generous Eurovision friends xx

Donation by Michele and Gary auty on 11/06/12

£150.00

+ £37.50 Gift Aid

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Donation by Tony Nuttall on 11/06/12

£20.00

+ £5.00 Gift Aid

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Good luck Tony and get well soon Millie!

Donation by Iain Bartholomew on 10/06/12

£20.00

+ £5.00 Gift Aid

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Good luck Tony

Donation by Mike Jupp on 07/06/12

£20.00

+ £5.00 Gift Aid

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Fantastic effort, Mark Trevor. Hope it all goes well with Millie's recovery.

Donation by Dejanka Bryant on 06/06/12

£20.00

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Good luck Tony, hope it all goes well and that you help raise a fantastic amount for Millie.

Donation by Ollie Hashim on 06/06/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£52,480.50
  • Offline donations£18,134.12
  • Text donations£267.00
  • Total raised£70,881.62
  • Gift Aid£9,664.72

* Charities pay a small fee for our service. Find out how much it is and what we do for it.