Raised so far: £198,408.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

For a great cause. x Donation by Anna-Louise Strawson 11/06/07  

£20.00

Well done Stelli!!! Donation by Andy 11/06/07  

£20.00

Congratulations Estelle, for all the ways you have honoured Nicky's memory Donation by Penny 10/06/07  

£30.00 + £8.46 Gift Aid

Congratulations on the run! The amount raised for the charity to date is quite amazing! Donation by Chris Hall 10/06/07  

£20.00 + £5.64 Gift Aid

Well done Estelle, See you at the 10k in August??!!?? Donation by Jen Black 10/06/07  

£20.00

Good Luck Estelle with the run - Catch up with you soon - Ga x Donation by Gary Baglole 09/06/07  

£20.00 + £5.64 Gift Aid

Good luck Estelle! I know Nicklet will be with you every step of the way. Love, L T & J xxx Donation by Linda Kenyon 09/06/07  

£200.00 + £56.41 Gift Aid

Run Stelli Run! Good Luck! Vic & Dickon xx Donation by Victoria Thomas 09/06/07  

£20.00

Good luck Estelle & well done, you're doing an amazing job raising so much. Sam, Rupert & Nicholas x Donation by Sam West 08/06/07  

£50.00 + £14.10 Gift Aid

Estelle - Good Luck with your run! See you this Summer in Brighton xxx Donation by Allison Burgin 08/06/07  

£20.00 + £5.64 Gift Aid

Estelle - don't know how long this race is from your text but hope it all goes well and good luck. Donation by Jonny H 08/06/07  

£30.00 + £8.46 Gift Aid

good luck estelle, running for nicky! xxxxx Donation by jacqui banwell 08/06/07  

£10.00 + £2.82 Gift Aid

You left me your car to get me back on the road and i'm glad to say we sold it for a load! Love u x Donation by Sam West 13/05/07  

£4,500.00 + £1,269.23 Gift Aid

Happy Birthday Sam. Lots of love, Mum xxxx Donation by Linda Kenyon 12/05/07  

£100.00 + £28.21 Gift Aid

remember you. love you, so glad to hear of your nephew with your namr. xxxxx Donation by karen malia 05/05/07  

£100.00 + £28.21 Gift Aid

Sorry this is late honey. So many happy Birthday memories - I miss you so much xxxx Donation by Nat 26/04/07  

£30.00 + £8.46 Gift Aid

happy Birthday Nicky. Keep whispering to us! Donation by Sarah Guthrie 24/04/07  

£30.00 + £8.46 Gift Aid

Happy Birthday Nicklet! Miss you... x x x Donation by Estelle 24/04/07  

£50.00

Happy Birthday Nicky.Remembered everyday with love. We will miss you forever.Love Mum T & J xxx Donation by Linda Kenyon 24/04/07  

£500.00 + £141.03 Gift Aid

Donation by Tanglin Trust School Ltd 02/04/07  

£675.00

Daddy got fined for spelling You're wrong! Donation by Henry & Leo again! 29/03/07  

£10.00 + £2.82 Gift Aid

Our Daddy misses you. He says your crumpet. What does that mean? Donation by Henry & Leo Hazlem 29/03/07  

£20.00 + £5.64 Gift Aid

Beautiful sunshine today, spring is in the air, thinking of you Nicky and your wicked laugh xx Donation by Lisa Craig 28/03/07  

£30.00 + £8.46 Gift Aid

Happy Birthday Grandma love from nicholas x x x x Donation by Nicholas Howell 11/02/07  

£50.00 + £14.10 Gift Aid

Happy Birthday Mum (Grandma!) lots of love sam rupert and nicholas x x x Donation by Sam West 11/02/07  

£150.00 + £42.31 Gift Aid

Donation by Derby Activity Social Hiking 07/01/07  

£183.00

Donation by Derby Activity Social Hiking 07/01/07  

£32.50

Too much fun teaching James. Wishing your charity every success. J.B. has given ip the fags! Donation by James Bracey 02/01/07  

£20.00 + £5.64 Gift Aid

Donation by James and Marie 02/01/07  

£20.00 + £5.64 Gift Aid

Donation by Paddy 30/12/06  

£20.00 + £5.64 Gift Aid
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* Total raised online: £105,624.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,716.01

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