Raised so far: £198,408.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

Thinking of you - here's to 2007 and GT Donation by Sarah Guthrie 30/12/06  

£20.00 + £5.64 Gift Aid

Happy Christmas Nicky. Miss you and love you forever. Mum, Tony & James xxx Donation by Linda Kenyon 25/12/06  

£1,000.00 + £282.05 Gift Aid

Dear Meela, always in our thoughts and especially on Christmas Day. Love you always. Donation by Rosemary McConnell 24/12/06  

£30.00 + £8.46 Gift Aid

Happy Christmas Meela, thinking of you every single day. With all our love, forever. Kaz and Ste X Donation by Caroline 24/12/06  

£10.00 + £2.82 Gift Aid

Merry Christmas, Johanna! Donation by Olof 24/12/06  

£100.00

To David, Ruth & Alicia. Something to start you off in your fund raising efforts. With Love. Donation by Ian Fraser 21/12/06  

£250.00 + £70.51 Gift Aid

Something small because i know it means a lot to Kristy x Donation by Fraser 15/12/06  

£100.00 + £28.21 Gift Aid

Thinking of you at Christmas Nicklet. Love from the children and parents of Miss Hood's class x Donation by Tanglin Trust School Ltd 29/11/06  

£100.00

Truly amazing and inspirational, you are a beautiful angel Nicky x x x Donation by Egg 16/11/06  

£10.00 + £2.82 Gift Aid

Donation by anonymous 13/11/06  

£100.00

For Meela, our niece and cousin, you will be in our hearts forever. Donation by Rosy, John and family 07/11/06  

£100.00 + £28.21 Gift Aid

For Meela Donation by leslie & hilary 14/10/06  

£100.00 + £28.21 Gift Aid

In loving memory of Meela Donation by Sally 12/10/06  

£50.00

For Meela always in my heart as a loving friend love from Emma and family Donation by Emma 06/10/06  

£20.00 + £5.64 Gift Aid

In loving memory of Meela Donation by anonymous 06/10/06  

£20.00 + £5.64 Gift Aid

Remembering you always Meela. All my love, Emily. x x x Donation by Emily Ross 05/10/06  

£20.00 + £5.64 Gift Aid

Donation by Margaret 28/09/06  

£10.00 + £2.82 Gift Aid

Donation by sheila beazley 09/08/06  

£50.00

For my special CF daughter as she turned 30 Donation by Carrie 03/08/06  

£500.00 + £141.03 Gift Aid

For Johanna Donation by Olof 27/07/06  

£100.00

xxx Donation by Anonymous 21/07/06  

£100.00 + £28.21 Gift Aid

Still thinking of you - still playing your song - you inspire us all Donation by Sarah Guthrie 21/07/06  

£50.00 + £14.10 Gift Aid

Feel sure that you can see all the people who are helping you to achieve your dream. Love Mum T&J XX Donation by Linda Kenyon 20/07/06  

£3,264.00 + £920.62 Gift Aid

In loving memory, Nicky you are always in our thoughts, love from Kat, Bondi & Fia xxx Donation by Bonds 19/07/06  

£100.00 + £28.21 Gift Aid

We were both 32 on 24th April, sending you my thoughts & blessings wherever you may be. Zoe x Donation by Zoe 13/07/06  

£20.00 + £5.64 Gift Aid

From the mum of a beautiful son with CF, thank you for all you have done to make his future brighter Donation by Lizzy Drew 10/07/06  

£10.00 + £2.82 Gift Aid

Pikers kind donation for his birthday fishing. Well done. Donation by Tony Kenyon 05/07/06  

£50.00 + £14.10 Gift Aid

Money raised from 50 mile bike ride. Nicky you will always be remembered Donation by Kristy Davies 02/07/06  

£450.00

FROM CAMERON HOUSE Donation by Tanglin Trust School Ltd 22/06/06  

£1,040.00

My best friend has CF. Nicky has been an inspiration! xxx Donation by T 06/06/06  

£10.00 + £2.82 Gift Aid
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* Total raised online: £105,624.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,716.01

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