Raised so far: £198,408.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

Wanted you all to know SHS have already donated £1446 in memory of Nicky. Donation by Surbiton High School 28/09/05  

£10.00

Thinking of Krystie and co climbing the mountain for nicky Donation by The Gillespie family 16/09/05  

£50.00 + £14.10 Gift Aid

Proceeds from the hugely successful NYMFS fishing day. Thanks to all particularly Peter,Stan & Dave. Donation by Tony Kenyon 10/09/05  

£2,500.00

Lots of Good Luck - have fun!! Love Jay & Brian Donation by Jay & Brian Miranda 09/09/05  

£20.00 + £5.64 Gift Aid

Good luck girls! Donation by Anonymous 07/09/05  

£50.00 + £14.10 Gift Aid

For PS. Kxx Donation by Karen 06/09/05  

£20.00 + £5.64 Gift Aid

Another generous donation from Ken & Pats friends in Normanby. Thank you so much, it means a lot! Donation by linda kenyon 28/08/05  

£200.00

Donation by Anonymous 25/08/05  

£10.00 + £2.82 Gift Aid

For Meela Donation by Aldridge 16/08/05  

£10.00 + £2.82 Gift Aid

Congratulations to Nathalie and Christian Donation by Johanna Snellman 12/08/05  

£20.00

I carelessly lost touch with a beautiful and witty friend who is now a very bright star above. Donation by simon campbell boreham 08/08/05  

£100.00 + £28.21 Gift Aid

Donation by Badger 08/08/05  

£50.00 + £14.10 Gift Aid

Donation by Ian Neild 04/08/05  

£50.00 + £14.10 Gift Aid

Dear Nicky, I hope your dream will come true.xxx Donation by Monika 04/08/05  

£10.00 + £2.82 Gift Aid

For Jonathan Edwards - thinking of you always Donation by Stephanie 04/08/05  

£20.00 + £5.64 Gift Aid

Dear Nicky - I saw you on TV last night. Absolutely inspirational... Donation by Jessica Pollitt 04/08/05  

£20.00

Nicky, thinking of you everyday as I train for the Gt North Run. Every step is for you and CF Trust Donation by Kate Woodger 26/07/05  

£10.00 + £2.82 Gift Aid

From Enzo, he must be missing you so much. Love Mum xxx Donation by Linda Kenyon 23/07/05  

£100.00 + £28.21 Gift Aid

Thinking of you & miss you with love from Kat & Bondi x Donation by Stephen Bond 21/07/05  

£100.00 + £28.21 Gift Aid

xxx - Miss you. Donation by Rob Hazlem 20/07/05  

£50.00 + £14.10 Gift Aid

With love, from Emma and Zachary Donation by Emma Howell 20/07/05  

£20.00 + £5.64 Gift Aid

Remembered with love today and every day. Mum, Tony & James xxx Donation by Linda Kenyon 20/07/05  

£500.00 + £141.03 Gift Aid

Another very kind donation from the girls of St Swithun's Winchester. Thank you Zara & all involved. Donation by Linda Kenyon 20/07/05  

£500.00

Elaine and I remember Nicky and all that she represented. Our thoughts are with Sam. xx Donation by Mr and Mrs D Fraser 20/07/05  

£250.00 + £70.51 Gift Aid

Collected at my 40th b'day party wish you were there miss you loads xxxx Donation by Suzanne & Barry 19/07/05  

£300.00

Donation by Mike 06/07/05  

£50.00 + £14.10 Gift Aid

Happy birthday Johanna & Meela, and thank you from Nicky's Mum. Donation by linda kenyon 05/07/05  

£100.00 + £28.21 Gift Aid

This is from my friends @ my b'day party last night. Ta muchly, I love u all. Meela xxx Donation by Meela 05/07/05  

£87.00

hugely generous reward from the Southey family for our stopping smoking. Thank you!! Donation by tony kenyon 04/07/05  

£1,000.00 + £282.05 Gift Aid

happy birthday meela Donation by Johanna Snellman 03/07/05  

£30.00
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* Total raised online: £105,624.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,716.01

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