Raised so far: £198,198.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

Inspired by this special person and by her beautiful song. Donation by Nicky and Tammy Perl 02/02/05  

£25.00 + £7.05 Gift Aid

Dear Sam & Rupert - Merry Christmas to you both - we look forward to seeing you both soon. Love E&D Donation by Elaine and Dougal Fraser 29/12/04  

£50.00 + £14.10 Gift Aid

Donation by David Westgate 28/12/04  

£25.00 + £7.05 Gift Aid

Happy Christmas Nicky. We miss you, it will never be the same. All our love, Mum, Tony and James. X Donation by linda kenyon 25/12/04  

£5,000.00 + £1,410.26 Gift Aid

In lieu of Sam & Rupert's presents. Thank you both from Nicky and us. Mum, Tony & James XXX Donation by linda kenyon 25/12/04  

£1,000.00 + £282.05 Gift Aid

In lieu of Christmas presents to our families this year. Thank you. Thinking of Nicky. Sam&Rupert. X Donation by Sam West 22/12/04  

£500.00 + £141.03 Gift Aid

From Emma and Zac with all our love this Christmas Donation by Emma Howell 21/12/04  

£50.00 + £14.10 Gift Aid

Best wishes, Christopher Broad Donation by Christopher Broad 20/12/04  

£20.00 + £5.64 Gift Aid

Happy Christmas Nicky, I miss you x x x Donation by Rob Hazlem 18/12/04  

£100.00 + £28.21 Gift Aid

Donation by Anonymous 18/12/04  

£10.00 + £2.82 Gift Aid

Proceeds of change box at Anderson's with our love Donation by Karen Malia 17/12/04  

£47.00 + £13.26 Gift Aid

In lieu of Christmas Cards Donation by Sally-Ann Kay 16/12/04  

£20.00 + £5.64 Gift Aid

Remembering Nicky at Christmas - donation in lieu of Corporate Christmas Cards from Anderson's Ltd Donation by Karen Malia 14/12/04  

£250.00 + £70.51 Gift Aid

Nicky's whisper inspires us all to follow your dream Donation by michael howell 13/12/04  

£300.00 + £84.62 Gift Aid

In memory of a good friend, Ian McMann Donation by Helen Hallas 07/12/04  

£40.00

From Nicky. "My parting gift to help others through my Whisper. Please continue to follow my dream" Donation by Rupert Howell 03/12/04  

£4,917.11 + £1,386.88 Gift Aid

Donation from Elang and Singa House, Tanglin Trust School, Singapore Donation by Lee Violet L K 30/11/04  

£835.00

Thanks, Nicky, for keeping me running! Sa x Donation by sarah kinslow 29/11/04  

£343.25 + £96.81 Gift Aid

Nicky, I hope your memory will always make me feel guilty about not trying harder and harder. Donation by Anonymous 26/11/04  

£20.00 + £5.64 Gift Aid

Donation by Elizabeth Buckley 23/11/04  

£20.00 + £5.64 Gift Aid

Nicky sounds a truly amazing inspiration to so many....good luck with the fundraising, great cause Donation by Harriet Buckley 06/11/04  

£20.00 + £5.64 Gift Aid

Donation by Anonymous 04/11/04  

£5.00 + £1.41 Gift Aid

Raised at a car boot sale having cleared our junk out of our storage unit! With love Sam & Rupert xx Donation by Rupert Howell 04/11/04  

£410.00 + £115.64 Gift Aid

Donation by Emma Richards 03/11/04  

£10.00 + £2.82 Gift Aid

i never knew Nicky and it's not much but her story touched me. Donation by Anonymous 20/10/04  

£5.00 + £1.41 Gift Aid

Donations made by guests in lieu of gifts at my recent 60th birthday. Donation by Dennis Reynolds 12/10/04  

£400.00 + £112.82 Gift Aid

good luck Donation by Anonymous 12/10/04  

£5.00

I so privileged to have known you and eternally grateful that you touched my life. Donation by Jacqueline Gorski 12/10/04  

£200.00

RAISED BY CF GRANDPARENTS FOR RUBY WEDDING Donation by JULIE PARKHOUSE 12/10/04  

£40.00 + £11.28 Gift Aid

Donated by Simon & Claire White - thank you Donation by Suzanne Hammer 10/10/04  

£10.00 + £2.82 Gift Aid
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* Total raised online: £105,414.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,684.99

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