Story

You can also donate by text message by texting OLIV95 and your amount £1 -  £10 to 70070.

Sadly Olivia took a turn for the worse early on in treatment and has been transferred to a hospital near by. Olivia is now dying and we need to bring her home. We are thankful for every person who donated to Olivia's appeal, giving her the last chance she so rightly deserved, but now we are hopeful that people will donate towards the costs of her emergency medical costs and her transport home.

23/12/06- THANK YOU to everyone who has donated, we can now get Olivia home as soon as she is physically able to come off the ventilator.  Costs are mounting while she is in the hospital so we still need your help, but we can now get Olivia home when she is ready. Please check into our facebook page for all the latest updates https://www.facebook.com/FamiliesAgainstNeuroblastoma THANK YOU!!!! xxxxxx

 

Thank you, from all the team at FAN.

Olivia's disease has been stubborn, and although the treatment in Germany clearly helped Olivia, it has progressed in other areas of her body. We are running out of options and our last real hope for a cure lies in Sono Photo Dynamic Therapy. Olivia has been accepted onto a course of treatment at a clinic in Mexico, that has years of experience of helping children with Neuroblastoma, including UK children, but we don't have enough funds to cover the costs. Please help us!

UPDATE FROM FAN

Thank you to everyone who has donated over the last few days. Olivia's target now stands at just over £15,000. Olivia has arrived safely in Mexico after a difficult flight and she is resting. Treatment needs to begin as soon as possible this week if Olivia is to have the best chance at survival possible. Please donate generously, or whatever you can, and help us tell everyone about Olivia and her fight for life.

Thank you, from all the team at FAN.

Olivia Downie is a 6 year old girl from Aberdeenshire, Scotland.  In January 2009, Olivia started complaining of severe backaches and tiredness, she looked very puffy and lethargic, she screamed in sheer agony for weeks and weeks.  We could not help her or get any rest.  We phoned NHS 24, paid numerous visits to the GP and outpatients department.  Then we took Olivia to Royal Aberdeen Children's Hospital.  They diagnosed cancer within 24 hours and then went onto diagnose Neuroblastoma Stage 4.  We were shocked and horrified to the core, devastated..... how could our sweet innocent child have cancer??!
Doctors started Olivia on chemotherapy straight away to shrink the main tumour on her left adrenal gland.  The treatments had horrible side effects, such as losing her beautiful blonde hair, violent sickness, loss of appetite, made her tired, confused and angry and gave her gastrionomitus.  After chemotherapy, they operated to remove the tumour, which was the size of a grapefruit.  Olivia had more chemotherapy to try to rid the bone marrow disease, and then high dose chemo, the hardest of all chemotherapies.  Olivia remained unconscious over her 5th birthday on Christmas Eve and Christmas Day 2009.  It was heartbreaking and soul destroying to watch our precious little girl go through all of this.  Her dad and I just wanted to take her pain and suffering away, do anything to stop it, but there was nothing we could do, except be there for her.  Olivia then had radiotherapy and was sent home for a short break. 
Through months of research, we discovered Immunotherapy, a new trial drug available to stop Neuroblastoma in its tracks.  The survival rate for Neuroblastoma stands at a terrifying 20%.  Unfortunately, Olivia was not eligible for the UK trial.  With the help of Olivia's consultant, our local MP and sheer persistence, we got the ok to take Olivia to Germany for Immunotherapy.  The local community came together through different fundraising ideas and raised money to help send Olivia for 6 cycles of treatment.  All seemed well, until scans performed at Olivia's 4th cycle discovered 2 new tumours.  This was a huge setback for Olivia, and we are terrified ot this relapse to say the least.  Now Germany have started Olivia on a new chemotherapy called RIST along with pills called inhibitors.  This method will be used until the 2 tumours found in the top of her spine and behind her breastbone shrink along with the cancer which remains in her pelvis and shoulder bones.  After this, Olivia will have operations to remove the beast of a disease left behind.  Hopefully, if all goes to plan, Germany will then perform a treatment which involves myself or my husbands stem cells being removed, so they can be given to Olivia in the hope of building a healthier, more efficient immune system so the body will be better at rejecting cancer.
All this treatment comes with substantial costs, which is a huge burden on us.  Thankfully, we have secured some funding from a charity to pay for the RIST drugs.  This has bought us some time, however, we still need to keep fundraising for everything else Olivia needs now, and what she might need in the future.  We have learned the hard way that this disease can and does throw a spanner in the works and we know all too well how having access to money is essential to pay for whatever she needs.
Please help us to make this life line available to us.  Ask yourself, what would you do?  WE CANNOT give up on our daughter!  PLEASE help us to save our daughters life.  From the bottom of our hearts, thank you!

 Donating here is easy or you could donate direct to the Natwest bank. Account Number:  88694275 Sort Code:  55-81-28.

For further details on ways to donate please visit www.familiesagainstneuroblastoma.org

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So please dig deep and donate now.

Raising money for

Families Against Neuroblastoma

Families Against Neuroblastoma

Charity Registration No. 1135974

FAN provides assistance and support in all aspects of dealing with Neuroblastoma. Our main objective is to help get UK children life saving treatment usually only available abroad at great expense. FAN also provides days out, wishes and holidays, campaigns for awareness and change, and more.

Donations 8552

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I just hope every little helps and so sad that nothing can be done for this lovely little girl! Why do these things happen to good innocent people?

Donation by claire owen on 20/07/12

text donation

Donation by Anonymous on 07/07/12

£10.00

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Every one, knows somebody, who has been touched by this terrible disease.

Donation by Ruaridh Macaskill on 07/07/12

£20.00

+ £5.00 Gift Aid

Donation by Mark Hopkins on 07/07/12

£25.00

+ £6.25 Gift Aid

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Donation by Juan Bustamante on 06/07/12

£10.00

text donation

Donation by Anonymous on 05/07/12

£2.00

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From Expro's Charity Committee

Donation by Jaclynne Steffens on 04/07/12

£100.00

+ £25.00 Gift Aid

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Donation by The Anticipation Cupcakes on 03/07/12

£10.00

+ £2.50 Gift Aid

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A star in Heaven. One brave little girl. Thinking so much about your family at this very difficult time.

Donation by margaret Middler on 01/07/12

£30.00

+ £7.50 Gift Aid

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Donation by Alexander Geddes on 30/06/12

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 29/06/12

£10.00

+ £2.50 Gift Aid

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Donation by Lynne Mellis on 29/06/12

£10.00

+ £2.50 Gift Aid

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Donation by Darren Young on 29/06/12

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 29/06/12

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 29/06/12

£5.00

+ £1.25 Gift Aid

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It's so sad... Wish there is a heaven and God will take good care of her little soul.

Donation by Gabor Drotos on 29/06/12

£10.00

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God bless little one......

Donation by Gordon Campbell on 29/06/12

£10.00

+ £2.50 Gift Aid

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From Customers at J.G. Ross (Bakers) Ltd

Donation by Robert Gordon on 29/06/12

£70.26

+ £17.57 Gift Aid

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With love and God bless x

Donation by Anonymous on 29/06/12

£20.00

+ £5.00 Gift Aid

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Another little bright star in the night sky god bless you sweetheart <3 lisa keates & family x

Donation by Lisa Keates on 29/06/12

£5.00

Best wishes from the Smart Family, Aberdeen

Donation by Alison Smart on 29/06/12

£50.00

+ £12.50 Gift Aid

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Donation by Mrs Laura Hutchison Dundee on 29/06/12

£10.00

+ £2.50 Gift Aid

Donation by vivita blumane on 28/06/12

£5.00

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Thinking of you Olivia and your family, hope this small donation helps. Alan & Lynn, Beith

Donation by Alan McDonald on 28/06/12

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 28/06/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£141,471.08
  • Offline donations£35,591.51
  • Text donations£13,552.00
  • Total raised£190,614.59
  • Gift Aid£28,992.73

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