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| Walk For TSC |
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About my nonprofit:
Tuberous Sclerosis Alliance
The mission of the TS Alliance is to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. Your particiption plays an integral role in carrying out this mission....
The mission of the TS Alliance is to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. Your particiption plays an integral role in carrying out this mission. By supporting the TS Alliance you make a difference in the lives of many.
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So far I have raised:
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$830.00
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| My personal message: |
Thank you for visiting this website devoted to finding a cure for TSC. Please join us for our annual walk-a-thon on Saturday, May 14, 2005 at the town Marina in Guilford, CT, at 530 Whitfield Street.
- Registration at 1:00pm
- Walk at 2:00pm
- Reception at 3:00pm
Below is a personal story written from a child's perspective who struggles with the effects of TSC every day. This is just one family out of many who live their lives dealing with this horrible disease. Please read on and we hope to have your support in bringing awareness and funding for this debilitating disease.
Hello, my name is Abigail and I am holding my twin sister Amelia. Even though both of us are three years old, I am a BIG SISTER. I watch and take care of Amelia - because she has a hard time doing just about everything. Amelia doesn't say any words, but we have our own special way of communicating. We love each other very much and I like to take care of her, because I'm the "Big Girl" and Amelia's the "Baby".
Abigail doesn't know it yet, but she and Amelia both have tuberous sclerosis. While Abigail has been seizure-free for two years now, things can change at any moment. It's been just over a year since Amelia had brain surgery, but the seizures haven't stopped. Both of their precious faces are starting to show the signs of this dreaded disease and Amelia's kidneys are now starting to grow cysts (given the fact that these two are identical twins, we can only sit back and wait for Abigail's kidneys to start growing cysts too). This disease is chronic, relentless and terrifying... and we hate it.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
The Rothberg Institute is a proud sposor and coordinator of this event. Additional sponsorship is welcomed and needed. Please contact us at tswalk@childhooddiseases.org.
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