Jonathan Taylor is fundraising for RETT syndrome Association UK

Triathlon Rett Syndrome Fund Raiser!

Emberton Country Park Sprint Triathlon 1

on 13/05/2007

Lily and Triathletes!

Photos (1)

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Team members:

Jonathan Taylor, Tim Gardiner, Barry Firth, Simon Taylor, Darren Rapp & Michaela Grant

Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Jonathan Taylor

RSS

Raised: 178%

Target: £1,500.00
Raised so far: £2,667.00

Donate now

My story

We did it!!!

Many thanks to my colleagues and to Welcome Break for supporting us!

Also many thanks to all our kind sponsors many of whom have dug deep to aid my fund raising for Rett Syndrome Association UK once again.

And many many thanks to Robert Collin for asking his friends and family to donate rather than to get him a birthday present on the 13th!

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Thanks for visiting our fundraising page. Please dig deep and sponsor us online.

Tim at work had the idea of us doing a team triathlon...
I thought that this was daft but a great way of raising money for my pet charity. So we dragged in Barry to join us.
I then went downstairs and roped in Simon, Darren & Michaela to be another team!
We now have two Welcome Break Triathlon Teams!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: RETT syndrome Association UK will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.
Jonathan (father of Lily who has Rett's)

For further info about Rett Syndrome please visit: www.rettsyndrome.org.uk/

	Good Luck!! Donation by Peenie 24/04/07	£20.00 + £5.64 Gift Aid
	Donation by karl simons 23/04/07	£20.00 + £5.64 Gift Aid
	Good Luck from all at Sweet Cred Donation by Stuart Hancock 20/04/07	£50.00 + £14.10 Gift Aid
	Swim Pig, swim for all you're worth! Donation by Simon Hernaman 20/04/07	£20.00 + £5.64 Gift Aid
	Rather you than us Jonathan!! Good luck. Donation by Trisoft 20/04/07	£40.00
	Good luck Tim, hope you get some sleep the night before! Donation by Mum & Dad 19/04/07	£20.00 + £5.64 Gift Aid
	Good Luck Daddy! I can't wait to watch you! x x Donation by Katy & Jack Gardiner 18/04/07	£20.00 + £5.64 Gift Aid
	Go go little bro! Good luck to the team Donation by Louise Firth (Bazza's big sis) 17/04/07	£10.00 + £2.82 Gift Aid
	Good Luck Guys! Donation by Laura (Big Red) 17/04/07	£20.00 + £5.64 Gift Aid
	All the best!! Donation by Clare Youngs 16/04/07	£10.00 + £2.82 Gift Aid
	Go the girls ! (and Simon) Donation by Alex McMillan 16/04/07	£20.00 + £5.64 Gift Aid
	Better late than never.Hope everything went well Donation by Roo 16/04/07	£20.00 + £5.64 Gift Aid
	Good luck lads! Donation by Jimmy Smith 16/04/07	£20.00 + £5.64 Gift Aid
	Good Luck Jon - I can also give a free pair of Triathlon shorts (with padding) if you need then. Donation by sarah@ukswimstore.com 14/04/07	£5.00 + £1.41 Gift Aid
	Best of luck Jon - feel the burn!! Donation by Louise Collin 13/04/07	£50.00 + £14.10 Gift Aid
	Thanks Beaker - can't get the nightmare of JT in Speedos out of my mind now Donation by Damian 13/04/07	£50.00 + £14.10 Gift Aid
	Good Luck! Donation by Gayle Hammick 13/04/07	£10.00 + £2.82 Gift Aid
	jon, good luck with the triathlon, hope you raise lots of money! Donation by hogie 13/04/07	£10.00 + £2.82 Gift Aid
	JT Speedos!! Not pretty - Good Luck Mate Donation by Beaker 13/04/07	£10.00 + £2.82 Gift Aid
	you'll fit into that wedding suit yet Donation by Barry's Dad 13/04/07	£20.00 + £5.64 Gift Aid
	Good Luck Donation by Theresa Knox 13/04/07	£20.00 + £5.64 Gift Aid
	Good luck!! Donation by Tamsin Powell 13/04/07	£20.00 + £5.64 Gift Aid
	Donation by CBIT 13/04/07	£20.00 + £5.64 Gift Aid
	Good luck!! Donation by La-Ryne 12/04/07	£5.00 + £1.41 Gift Aid
	Donation by Barry's Mum 12/04/07	£20.00 + £5.64 Gift Aid
	what is that? stumbling out of the bar Donation by craigo 12/04/07	£10.00 + £2.82 Gift Aid
	Good Luck Bazza....go boy go....no stumbling!! xxx Donation by Aunty Ann 12/04/07	£10.00 + £2.82 Gift Aid
	Good Luck, such a good cause, hope you reach your target Donation by Lucy 12/04/07	£10.00 + £2.82 Gift Aid
	All the Best Donation by Wendy 11/04/07	£20.00 + £5.64 Gift Aid
	you're nuts! But still marvellous. congrats on doing it and good luck! x Donation by flem 11/04/07	£10.00 + £2.82 Gift Aid

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* Total raised online:	£1,255.00
Offline donations:	£1,412.00
Gift Aid plus supplement:	£308.85

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.