Jonathan Taylor is fundraising for RETT syndrome Association UK

Triathlon Rett Syndrome Fund Raiser!

Emberton Country Park Sprint Triathlon 1

on 13/05/2007

Lily and Triathletes!

Photos (1)

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Team members:

Jonathan Taylor, Tim Gardiner, Barry Firth, Simon Taylor, Darren Rapp & Michaela Grant

Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Jonathan Taylor

RSS

Raised: 178%

Target: £1,500.00
Raised so far: £2,667.00

Donate now

My story

We did it!!!

Many thanks to my colleagues and to Welcome Break for supporting us!

Also many thanks to all our kind sponsors many of whom have dug deep to aid my fund raising for Rett Syndrome Association UK once again.

And many many thanks to Robert Collin for asking his friends and family to donate rather than to get him a birthday present on the 13th!

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Thanks for visiting our fundraising page. Please dig deep and sponsor us online.

Tim at work had the idea of us doing a team triathlon...
I thought that this was daft but a great way of raising money for my pet charity. So we dragged in Barry to join us.
I then went downstairs and roped in Simon, Darren & Michaela to be another team!
We now have two Welcome Break Triathlon Teams!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: RETT syndrome Association UK will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.
Jonathan (father of Lily who has Rett's)

For further info about Rett Syndrome please visit: www.rettsyndrome.org.uk/

	Well done, and Good Luck...All I can say is "Run Forrest..Run !" Donation by Aoife Anderson 10/04/07	£20.00 + £5.64 Gift Aid
	Good luck with the freezing water! ;) Donation by Brich 10/04/07	£10.00 + £2.82 Gift Aid

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* Total raised online:	£1,255.00
Offline donations:	£1,412.00
Gift Aid plus supplement:	£308.85

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.