Rett Syndrome Research Trust UK

Registered charity number 1136809

On JustGiving since Jul 2010

Make a donation

One-off donation

£20 will support the vital research projects focused on treatments and cures

£50 will move us closer to treatments and cures for our children

£100 will enable us to drive research developments into treatment for our girls

Or give another amount:£ Enter the amount you wish to donate as a one-off payment:

Monthly donation

£5 will help sustain our commitment to the research we support

£10 will move us closer to treatment in our childrens' lifetimes

£20 will help us reach our goal of delivering clinical trials within 5 years

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Face to Face with Rett Syndrome

Why your donation matters

Rett Syndrome is a devastating condition for which there is currently no treatment. Baby girls are born healthy but begin to regress between the ages of 12-36 months. Most are left with complex medical needs and severe disabilities. Until recently, there was no hope.

Research has now clearly demonstrated the possibility of a cure. Scientists at the University of Edinburgh have proven that replacing a missing protein eradicates symptoms, even in models of late stage disease.

Your gift of £5 a month could help us translate these astonishing research developments into treatment for Rett Syndrome within 10 years.

We are a lean organisation which enables us to invest 98p in every pound directly into medical research.

Your generous gift will be put straight to work.

Case study: donations in action

Beth is 11 now. Her back is so bent that she can’t sit up properly anymore. I’m terrified of the surgery. 'A controlled car crash' the surgeon called it. Who wants to put their daughter forward for one of those?

She was a really bright baby, looking at everything, bringing me toys and then it all stopped. She just sat rocking, distressed; nothing could calm her down. She did speak. Just a few words. She never even got as far as saying 'dad.'

I don’t need a cure for Beth. I’ve never felt like I lost anything, I’ve always felt like I’ve gained by having her. But I want it for her-to be able to say whether she likes her dinner or if she wants something else. I wonder what it would be like for her to have friends.

Beth is waiting. That’s what I say when people tell me they haven’t got around to helping. That there’s a girl here, stuck in her wheelchair, can’t move, bent over double. Waiting for treatment that will be delivered if we can just keep the funds coming in.