My lovely daughter Romi has Rett Syndrome.  Rett Syndrome is a rare neurological disorder that affects mainly girls. Rett Syndrome has taken Romi's voice, robbed her of the use of her hands and left her with breathing problems and uncontrolled epilepsy. She has a tube for feeding and requires round-the-clock care and support.  At present there is no cure for Rett Syndrome. However, in 2007, Prof Adrian Bird and colleagues, at the University of Edinburgh, demonstrated that the symptoms of Rett could be reversed in a mouse model. There is real hope that this research will lead to a cure for Rett Syndrome.

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