My story

THIS IS IT.......... my JustGiving page.

So here we are "2012" and with the start of a new year is another oppurtunity to make a difference!! With so many new and exciting things happening in the world of Cystic Fibrosis such as GENE THERAPY to name one, wouldn't it be great to support such a great cause!!

So welcome to RUNNING4RONNIE

Ronnie (my gorgeous boy) is one of the over 9000 people in the UK born with Cystic Fibrosis. CF is the UK's most life threatening inherited diseases, it is not a contagious disease but caused by inheriting two faulty genes one from each parent. Over 2 million people in the UK carry this faulty gene!!!

 

Have a click on the video link on this page, it's a great little film explaining what CF is........

 

Sooooooooo what am i doing you ask???

I'm running/walking 4 Ronnie, to raise money for the "CF Trust" they are the UK's only national charity dedicated to all aspects of CF. Here is what they do.......they fund the ongoing research for a cure, they fund improving medication to make day to day life more "normal" and they also fund specialised clinics & train top consultants and nurses to give our loved ones the very best treatment and care.

 

There is no government funding for Cystic Fibrosis so all the work done by the Trust is totally reliant on generous donations!!!!

Ours would be a different story if it wasn't for the CF Trust, so anything you can give is soooo appreciated by my family and the 9,000 other families fighting this disease everyday.

My first event will be during CF Week 29 April - 5 May....This has been re-scheduled for 24th June, with me and hopefully a team of friends (let me know if you want to join us) will be walking over the Severn Bridge and back again. It would be great if you could join us and/or make a donation, just follow the instructions below to Donate quickly and safely, knowing the money goes straight to the CF Trust....oh and don't forget to leave a message, always lovely to know who has donated :) http://www.cftrust.org.uk/

 

JUST CLICK ON THE LINK TO DONATE

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now. XXX

My charity

Cystic Fibrosis Trust

Cystic Fibrosis Trust

Charity Registration No. 1079049

Cystic fibrosis (CF) is a life-shortening inherited disease, affecting almost 10,000 people in the UK, clogging vital organs with thick sticky mucus. There is presently no cure. We are the UK’s only national charity working for families with CF and to find a cure. www.cysticfibrosis.org.uk

Donations 28

cupcake.png

Well done Sam - you're doing sterling work for the CF Trust. Hope to catch up soon!

Donation by adrian llewellyn-jones on 28/06/12

£20.00

+ £5.00 Gift Aid

smiley.png

Donation by Anonymous on 28/06/12

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 03/06/12

£1.00

windmill.png

Good luck huni Xx

Donation by carla freaney on 07/05/12

£10.00

Superman.png

You go super team

Donation by Louise Crocker on 29/04/12

£10.00

text donation

Donation by Anonymous on 27/04/12

£1.00

text donation

Donation by Anonymous on 23/04/12

£5.00

heart.png

Well done, Sam

Donation by from 1 of your sisters on 23/04/12

£10.00

smileys.png

TeamRonnie - 5 miles to go - Hope the weather will be OK - New Boots on and Poncho in the Rucksack, the pace will be 140

Donation by Mum & Dad on 22/04/12

Jumping.png

You are a fantastic mum and I bet your family are very proud of you! Hope the weather stays dry for you

Donation by Jane Cliffe on 20/04/12

£10.00

+ £2.50 Gift Aid

windmill.png

Good luck, Sam! Hope the weather is ok and that you enjoy the experience. Xxx

Donation by Sian Wilton on 20/04/12

£10.00

+ £2.50 Gift Aid

Inmem.png

Have been waiting for your total to rise and just wanted to help tip you over the edge!!!:-)All the best for the walk. Lots of love;-DMTBI

Donation by Davina Tatum on 20/04/12

£18.00

cupcake.png

Hi Sam, you go girl, all our love to all the family, xxxxxxxx

Donation by teresa windust on 20/04/12

ThumbsUp.png

Good luck! :)

Donation by Ian on 17/04/12

£5.00

+ £1.25 Gift Aid

Trophy.png

sorry its not much but hope it helps allthe best on the day xxx

Donation by darren meeney on 14/04/12

£10.00

+ £2.50 Gift Aid

Jumping.png

Donation by mica williams on 13/04/12

thumbsUp.png

All the best sam ,run run run, you can do it. Me, i can just about walk, love to all the fam. xx

Donation by camilla williams on 13/04/12

Superman.png

good luck xxxx

Donation by elizabeth davies on 13/04/12

£5.00

+ £1.25 Gift Aid

text donation

Donation by Anonymous on 13/04/12

£5.00

mobile-phone.png

Donation by Amelia Mills on 27/03/12

£5.00

+ £1.25 Gift Aid

text donation

Donation by Anonymous on 27/03/12

£3.00

Trumpet.png

Good luck Sam! Hope it goes brilliantly and you raise lots! Xxx

Donation by Mandi Nicholls on 09/03/12

£10.00

+ £2.50 Gift Aid

smileys.png

Have a great day, sorry I cant be there myself, next time though! =) x

Donation by Barnabas Cheeseman on 11/02/12

£20.00

heart.png

YOU GO GIRL,,, WILL BE THINKING OF YOU, TRACEY X X X

Donation by tracey vogel on 10/02/12

£20.00

+ £5.00 Gift Aid

present.png

from me and emily xx

Donation by james frazer-mann on 10/02/12

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations£280.00
  • Offline donations£0.00
  • Text donations£20.00
  • Total raised£300.00
  • Gift Aid£48.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.