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The Neuroblastoma Alliance - Sadie Rose Clifford Appeal
Event: Neuroblastoma Alliance - Sadie Rose Clifford Appeal on 31/12/2013
$662,530.47 raised
2994 donations
My Target:
$662,530.47 raised so far
How to make a donation
Donate online at - www.justgiving.com/sadie-rose-appeal
By mobile internet Scan this code on your smartphone to go straight to The Neuroblastoma Alliance UK's page.
By text message to donate £10 Text SADI99 £10
to 70070
My story
We are very sorry to report that on the 15th June 2012, following further tests, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. At 5.15pm on 25th June, Sadie fell asleep forever, surrounded by her family.
You can still make a donation in Sadie's memory. All the funds raised for Sadie's Appeal, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease.
Every donation, no matter how small, will make a difference.
This is Sadie's story about her fight with neuroblastoma...
Beautiful Sadie Rose was born on 8th August 2009 weighing a very healthy 8lbs 6oz. But in October 2010, after being unwell for a month, parents Katie and Darren were told that 14 month old baby Sadie had stage 4 neuroblastoma.
Sadie has been through front line treatment here in the UK. This included 70 days of chemotherapy in November 2010, major surgery in February 2011 to remove a large tumour which was located above her left kidney and wrapped around the main artery in the body, her aorta. Sadie bounced back after this life threatening operation and was home after just over a week in hospital.
In March 2011 Sadie had an intensive course of high dose chemotherapy to prepare her body for her stem cell transplant. Sadie had her own stem cells given back, with the aim of helping her fight the neuroblastoma. Unfortunately she developed a very serious and potentially life threatening liver disease called veno-occlusive disease (VOD) as a side effect from her high dose chemotherapy.
Sadie had 3 weeks of radiotherapy in June and in July, Sadie started immunotherapy treatment. After just 2 weeks treatment she had a seizure, and an emergency CT showed that there was a tumour on the right side of her brain. The next day a 4 hour operation to remove the tumour took place, and tissue samples were sent to the lab for tests. These showed that the tumour was cancerous, and that the neuroblastoma had returned.
Sadie has since had more procedures, like bone marrow tests, CT and heart scans and specialised bone scans (MIBG). The results of these were used to determine the plan for further treatment at the Memorial Sloan Kettering Hospital in America.
Katie and Darren went to America in January and Sadie Rose began the specialised treatment in America. Her treatment costs were quoted at £500,000. Katie and Darren, and their community, aimed to raise as much as possible to cover the costs. However, on the 18th January the family's life was once again turned upside down, when new scan showed that Sadie Rose had relapsed again with tumours in her liver and chest.
Sadie was treated for this relapse in New York as a matter of urgency and Sadie received chemotherapy to try and arrest the disease. Then the family came back to the UK where Sadie continued to have treatment in the hope that she would be able to join a new trial for relapsed neuroblastoma.
However, on 15th June 2012, following further checks, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. Sadie passed away on 25th June.
You can still make a donation in Sadie's memory. All the funds raised for Sadie, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease.
Every donation, no matter how small, will make a difference.
My gallery 1
My charity
Neuroblastoma Children's Cancer Alliance
Charity Registration No. 1135601
We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.
Donations 2994
keep fighting sadie rose xxxx
Donation by sarah ashton on 20/01/12
£20.00
Wishing the very best for you - God bless x
Donation by JILL BYRNE on 20/01/12
£10.00
+ £2.50 Gift Aid
Donation by Emma Sowerby on 20/01/12
£20.00
+ £5.00 Gift Aid
Donation by michele lofthouse on 20/01/12
£3.00
+ £0.75 Gift Aid
Donation by andy todd on 20/01/12
£20.00
+ £5.00 Gift Aid
Prayers and thoughts with you all, such a brave little girl who has been through so much xx
Donation by Suzanne Linford on 20/01/12
£20.00
+ £5.00 Gift Aid
Donation by Shona saville on 20/01/12
£10.00
+ £2.50 Gift Aid
Beautiful little girl with so much courage and strength, all my thoughts and wishes are with you and your family xxxxx
Donation by louise higgins on 20/01/12
£10.00
+ £2.50 Gift Aid
Donation by stephen mahhtews on 20/01/12
£50.00
+ £12.50 Gift Aid
All the best to this brave little fighter and her wonderful family.
Donation by Lorenzo Gaertner on 20/01/12
£20.00
Donation by Anonymous on 20/01/12
£5.00
+ £1.25 Gift Aid
Donation by eileen ansell on 20/01/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 20/01/12
£10.00
Donation by Dave Flett on 20/01/12
£5.00
+ £1.25 Gift Aid
Sending my love xxx
Donation by Emmajane Sheppard on 20/01/12
In memory of the baby daughter we lost in 1975. Good luck.
Donation by Anonymous on 20/01/12
£10.00
keep strong and keep going. x
Donation by jo wrigley on 20/01/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 20/01/12
£5.00
Donation by Anonymous on 20/01/12
£5.00
+ £1.25 Gift Aid
Sending love to all the family xx
Donation by katherine waters on 20/01/12
£5.00
+ £1.25 Gift Aid
Donation by Anonymous on 20/01/12
£10.00
Lots of love to Sadie Rose xxx
Donation by Lucie Yates on 20/01/12
£5.00
+ £1.25 Gift Aid
Wishing Sadie Rose all the luck in the world.
Donation by Sophie Tait on 20/01/12
£10.00
Beautiful little girl. Pulls on heart strings when a Child the same age as your own Grandchildren is in such need. J & A. Guiseley
Donation by Julie & Andy Cook on 20/01/12
£20.00
+ £5.00 Gift Aid
Donation by corinne griffin on 20/01/12
£5.00
+ £1.25 Gift Aid
Donation summary
- * Online donations$83,046.24
- Offline donations$565,306.13
- Text donations$14,178.10
- Total raised$662,530.47
- Gift Aid$15,832.36
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
