My story

We are very sorry to report that on the 15th June 2012, following further tests, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. At 5.15pm on 25th June, Sadie fell asleep forever, surrounded by her family. 


You can still make a donation in Sadie's memory. All the funds raised for Sadie's Appeal, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease. 

 

Every donation, no matter how small, will make a difference.

 

 

This is Sadie's story about her fight with neuroblastoma...

Beautiful Sadie Rose was born on 8th August 2009 weighing a very healthy 8lbs 6oz. But in October 2010, after being unwell for a month, parents Katie and Darren were told that 14 month old baby Sadie had stage 4 neuroblastoma.

Sadie has been through front line treatment here in the UK. This included 70 days of chemotherapy in November 2010, major surgery in February 2011 to remove a large tumour which was located above her left kidney and wrapped around the main artery in the body, her aorta. Sadie bounced back after this life threatening operation and was home after just over a week in hospital. 

In March 2011 Sadie had an intensive course of high dose chemotherapy to prepare her body for her stem cell transplant. Sadie had her own stem cells given back, with the aim of helping her fight the neuroblastoma. Unfortunately she developed a very serious and potentially life threatening liver disease called veno-occlusive disease (VOD) as a side effect from her high dose chemotherapy.

Sadie had 3 weeks of radiotherapy in June and in July, Sadie started immunotherapy treatment. After just 2 weeks treatment she had a seizure, and an emergency CT showed that there was a tumour on the right side of her brain. The next day a 4 hour operation to remove the tumour took place, and tissue samples were sent to the lab for tests. These showed that the tumour was cancerous, and that the neuroblastoma had returned.

Sadie has since had more procedures, like bone marrow tests, CT and heart scans and specialised bone scans (MIBG). The results of these were used to determine the plan for further treatment at the Memorial Sloan Kettering Hospital in America.

Katie and Darren went to America in January and Sadie Rose began the specialised treatment in America. Her treatment costs were quoted at £500,000. Katie and Darren, and their community, aimed to raise as much as possible to cover the costs. However, on the 18th January the family's life was once again turned upside down, when new scan showed that Sadie Rose had relapsed again with tumours in her liver and chest.

Sadie was treated for this relapse in New York as a matter of urgency and Sadie received chemotherapy to try and arrest the disease. Then the family came back to the UK where Sadie continued to have treatment in the hope that she would be able to join a new trial for relapsed neuroblastoma.

However, on 15th June 2012, following further checks, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. Sadie passed away on 25th June.

You can still make a donation in Sadie's memory. All the funds raised for Sadie, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease.

Every donation, no matter how small, will make a difference.



 

My gallery 1

My Team

Team photo
Sadie Rose Clifford

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2994

Good Luck !!! xxx

Donation by barry wiltshire on 07/12/11

Hope you manage to get to the total you need for your lovely little girl x x

Donation by Michelle Roberts-Mannion on 07/12/11

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 07/12/11

£10.00

+ £2.50 Gift Aid

What a brave little girl!

Donation by Stephen Cree on 07/12/11

£25.00

+ £6.25 Gift Aid

What a lovely girl she is, Best Wishes.

Donation by Maureen Grant on 07/12/11

£5.00

+ £1.25 Gift Aid

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To help a beautiful little girl. x

Donation by Claire Mullen on 07/12/11

£10.00

+ £2.50 Gift Aid

Sending you lots of love and healing brave little girl xxx

Donation by Karen Long on 07/12/11

£50.00

+ £12.50 Gift Aid

Donation by Anonymous on 07/12/11

Love, Hope and Best Wishes from one Sadies' mum to another. x x x x

Donation by sarah shaw on 07/12/11

£5.00

+ £1.25 Gift Aid

GOD BLESS YOU SADIE, LOVE FROM US ALL.

Donation by john langley on 07/12/11

£100.00

+ £25.00 Gift Aid

text donation

Donation by Anonymous on 07/12/11

£10.00

Hope you reach your target soon. God Bless

Donation by Geoff Bowcock on 07/12/11

£25.00

+ £6.25 Gift Aid

text donation

Donation by Anonymous on 07/12/11

£5.00

God bless your little Angel. We hope that you raise the much needed funds x

Donation by Chris & Leah Hodkin on 07/12/11

£20.00

+ £5.00 Gift Aid

Donation by Anne Frost on 07/12/11

£5.00

+ £1.25 Gift Aid

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Hope it helps. I wish I could give more. X

Donation by Steve Dodd on 07/12/11

Just seen you all on TV,what an inspiration, what a beautiful little girl, our thoughts are with you, just keep strong and be positive!

Donation by Antoinette Wing on 07/12/11

£25.00

All the best sweetheart I wish I could pay for all of it. Keep strong mum and dad I dont know how you do it hugs xxxxxxxxxxxxx

Donation by D Bean on 07/12/11

£10.00

+ £2.50 Gift Aid

Just watched the film on tv and just had to donate. I really hope that you reach your target as quickly as possible.

Donation by Paul Simpson on 07/12/11

£10.00

+ £2.50 Gift Aid

You have such a special beautiful angel in sadie, stay strong and never stop beliveing!! Our thoughts are with you, god bless xxxx

Donation by Lisa Hindley on 07/12/11

£10.00

+ £2.50 Gift Aid

Donation by Noel Barker on 07/12/11

£20.00

+ £5.00 Gift Aid

God Bless

Donation by janet self on 07/12/11

Keep strong. Wish we could give you the full amount xxx

Donation by Pete, Sharon and Layla on 07/12/11

£20.00

+ £5.00 Gift Aid

Donation by BB on 07/12/11

Lets hope that you get a lot of support to help you get the treatment your require. Good Luck.

Donation by Andrew Dyson on 07/12/11

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations$83,165.39
  • Offline donations$566,117.19
  • Text donations$14,198.44
  • Total raised$663,481.02
  • Gift Aid$15,855.07

* Charities pay a small fee for our service. Find out how much it is and what we do for it.