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The Neuroblastoma Alliance - Sadie Rose Clifford Appeal
Event: Neuroblastoma Alliance - Sadie Rose Clifford Appeal on 31/12/2013
£437,011.06 raised
2994 donations
My Target:
£437,011.06 raised so far
How to make a donation
Donate online at - www.justgiving.com/sadie-rose-appeal
By mobile internet Scan this code on your smartphone to go straight to The Neuroblastoma Alliance UK's page.
By text message to donate £10 Text SADI99 £10
to 70070
My story
We are very sorry to report that on the 15th June 2012, following further tests, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. At 5.15pm on 25th June, Sadie fell asleep forever, surrounded by her family.
You can still make a donation in Sadie's memory. All the funds raised for Sadie's Appeal, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease.
Every donation, no matter how small, will make a difference.
This is Sadie's story about her fight with neuroblastoma...
Beautiful Sadie Rose was born on 8th August 2009 weighing a very healthy 8lbs 6oz. But in October 2010, after being unwell for a month, parents Katie and Darren were told that 14 month old baby Sadie had stage 4 neuroblastoma.
Sadie has been through front line treatment here in the UK. This included 70 days of chemotherapy in November 2010, major surgery in February 2011 to remove a large tumour which was located above her left kidney and wrapped around the main artery in the body, her aorta. Sadie bounced back after this life threatening operation and was home after just over a week in hospital.
In March 2011 Sadie had an intensive course of high dose chemotherapy to prepare her body for her stem cell transplant. Sadie had her own stem cells given back, with the aim of helping her fight the neuroblastoma. Unfortunately she developed a very serious and potentially life threatening liver disease called veno-occlusive disease (VOD) as a side effect from her high dose chemotherapy.
Sadie had 3 weeks of radiotherapy in June and in July, Sadie started immunotherapy treatment. After just 2 weeks treatment she had a seizure, and an emergency CT showed that there was a tumour on the right side of her brain. The next day a 4 hour operation to remove the tumour took place, and tissue samples were sent to the lab for tests. These showed that the tumour was cancerous, and that the neuroblastoma had returned.
Sadie has since had more procedures, like bone marrow tests, CT and heart scans and specialised bone scans (MIBG). The results of these were used to determine the plan for further treatment at the Memorial Sloan Kettering Hospital in America.
Katie and Darren went to America in January and Sadie Rose began the specialised treatment in America. Her treatment costs were quoted at £500,000. Katie and Darren, and their community, aimed to raise as much as possible to cover the costs. However, on the 18th January the family's life was once again turned upside down, when new scan showed that Sadie Rose had relapsed again with tumours in her liver and chest.
Sadie was treated for this relapse in New York as a matter of urgency and Sadie received chemotherapy to try and arrest the disease. Then the family came back to the UK where Sadie continued to have treatment in the hope that she would be able to join a new trial for relapsed neuroblastoma.
However, on 15th June 2012, following further checks, Katie and Darren received the absolutely devastating news that Sadie could no longer be helped. Sadie passed away on 25th June.
You can still make a donation in Sadie's memory. All the funds raised for Sadie, that were not spent on her medical costs, will be used to help other children to get the neuroblastoma treatment they need, or on research into the disease.
Every donation, no matter how small, will make a difference.
My gallery 1
My charity
Neuroblastoma Children's Cancer Alliance
Charity Registration No. 1135601
We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.
Donations 2994
My wife and I were devastated by the very sad news about darling little Sadie Rose. Her bravery was truly inspirational.
Donation by Peter Moore on 01/07/12
£100.00
+ £25.00 Gift Aid
Donation by Anonymous on 30/06/12
£1.00
Our thoughts are with you all at this time x
Donation by Liz & Eddie Ashworth on 29/06/12
£10.00
+ £2.50 Gift Aid
I can't think of a better way to celebrate Sadie's life than to try and help another child. Fly high Sadie xx
Donation by Lynn & Ian Lindsay (Knaresborough) on 29/06/12
£20.00
+ £5.00 Gift Aid
Donation by Desanka Smith on 29/06/12
£10.00
+ £2.50 Gift Aid
I can't put into words how sorry I am for the loss of your brave little girl Sadie Rose. She reached out & touched the hearts of so many xx
Donation by Zoe Paskin on 29/06/12
£15.00
+ £3.75 Gift Aid
So sorry for your loss. May God give you and your family strength and comfort at this very difficult time xxx
Donation by Katherine Darley on 28/06/12
£10.00
+ £2.50 Gift Aid
Thinking of you at this sad time, your daughter did you proud, brave little lady xx
Donation by Lindsay Lee on 28/06/12
£10.00
+ £2.50 Gift Aid
With deepest sympathy for your loss of Sadie Rose. Our thoughts and prayers are with you and your family.
Donation by Wendy and Will Trevor on 28/06/12
£20.00
+ £5.00 Gift Aid
So very sorry for your loss
Donation by Andy Butcher on 28/06/12
£10.00
+ £2.50 Gift Aid
Sleep tight little one. Lots of love to Darren, Katie and Sadie Rose's loved ones. xxx
Donation by Ali and Charlotte xx on 27/06/12
£10.00
+ £2.50 Gift Aid
Donation by Fiona Gardner on 27/06/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 27/06/12
£2.00
+ £0.50 Gift Aid
Donation by Anonymous on 27/06/12
£3.00
Donation by Anonymous on 27/06/12
£2.00
Donation by Anna brown on 27/06/12
£5.00
+ £1.25 Gift Aid
Donation by Daniel Rawson on 27/06/12
£3.00
+ £0.75 Gift Aid
Donation by Anonymous on 27/06/12
£10.00
RIP xxxxxxxxxxx
Donation by Darren South on 27/06/12
£10.00
+ £2.50 Gift Aid
Donation by Anonymous on 27/06/12
£5.00
So sorry for your loss x
Donation by Laura Cunningham on 27/06/12
£5.00
+ £1.25 Gift Aid
How very softly you tiptoed into our world, almost silently, only a moment you stayed. But what an imprint you footsteps have left upon our hearts
Donation by David Bradley on 26/06/12
£5.00
+ £1.25 Gift Aid
Donation by vicky on 26/06/12
£10.00
+ £2.50 Gift Aid
Donation by Tim Coghlan on 26/06/12
£10.00
+ £2.50 Gift Aid
Rip beautiful x
Donation by jenna carter on 26/06/12
£3.00
+ £0.75 Gift Aid
Donation summary
- * Online donations£54,778.05
- Offline donations£372,881.01
- Text donations£9,352.00
- Total raised£437,011.06
- Gift Aid£10,443.17
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
