We are doing a 10 mile walk in memory of indi faith to raise as much as we can for the neonatal intensive care unit where indi faith spent 11 weeks of her life fighting a very rare condition of megacystis microcolon intestinal hypoperistalsis syndrome.

Me and sam found out i was pregnant at 5 weeks, we were shocked but also very happy too. I had to have some blood tests done until our 12 week scan as iv had complications before. When we went to our scan i was exactly 12 weeks, seeing our baby on the screen was amazing it was so clear we were so happy and our baby was healthy. The day of our 20 week scan we were really excited as we wanted to know the sex of our baby, so i hopped on the bed waiting to be scanned the lady then said it was a girl my heart sunk we did set out for a boy but we were still extremely happy the lady then stopped and said unfortunately something doesnt seem right and that we would have to wait a week to see a consultant we wasnt just going to leave so we demanded to see someone. Thankfully there was a consultant around but we had to wait a couple of hours so we went for some lunch. When we came back i had to be scanned again and the consultant assumed we was having a boy as this condition is quite common in boys, he had to refer us to a higher up Dr at princess anne hospital in southampton to get more answers, we had to wait a week to be seen though which felt like the longest week ever.

We arrived at princess anne hospital to be seen by Dr Howe and hes colleagues where i was scanned again it was so nice to see our baby but we just wanted to know what was wrong i was 21 weeks by now after the scan they took us into a quiet room and explained the condition they thought it was they said it would be good to do some tests, of course we agreed we wanted to do anything to find all the answers so i had an amnosetis to check all the chromes and to see if our baby was down syndrome, me and sam had blood tests done too. After that, all these horrible words were coming out there mouth like what we wanted to do next meaning to carry on with the pregnancy or to terminate they gave us 3 weeks to decide i didnt even know you could terminate at 24 weeks i couldnt believe it i couldnt end my baby's life we had to give it a chance as we would never forgive ourselfs for not trying our hardest, i felt our baby move had a bump it wasnt very big but that wasnt the point. It was the most hardest decision we had to make as it would also be a very long journey, i always knew what i wanted but it wasnt all down to me as sam mattered too. By the time i got to 24 weeks we had all our results back our baby was a girl she didnt have down syndrome and all her chromes were fine. We had decided to carry on, it felt like a whole weight had been lifted off our shoulders but we still had the rest of my pregnancy to get through. We were seen every week which helped and reasurred us alot but when i was 27 weeks i was in so much pain my tummy had got so hard itchy and shiny its because i had alot of fluid build up so Dr Howe decided to drain me, he said it may cause labour which wasnt good as it would add more complications. I had a long needle put through my tummy i watched and felt it shrink he had drained 1 and a half litres i just felt normal again and i actually started to enjoy my pregnancy for a few weeks until i reached 33 weeks i started to feel really weird my tummy was hard again i just thought it was because of the fluid build up so i left it a few days to see if there would be any change. It was monday morning on the 5th november 2012 i was getting ready for work but then i kept going funny so i took myself to qa to get checked over they did a heart trace i was there for a few hours then they transferred me to princess anne where they did another heart trace i got sent down to see Dr Howe and he said that he would need to drain our baby girls bladder i was really anxious and scared as this was the only time sam wasnt with me as he was at work and there was a big chance that i would go into labour this time i didnt want him to miss the birth of our first child. Dr Howe had drained 1600 off her which was a massive amount then i got sent back up to have another heart trace where i started to get pains, they gave me a steroid injection and some pain killers then all the doctors surrounded my bed and explained i needed an emergency c section as my baby heart rate was dropping i was devastated i wanted to wait until sam had got there but they couldn't wait so i went into theatre with my mum by mybside, sam got there just in time before they whisked her away we only got to see her for a second and managed to get a quick picture of her, we didnt even hear her cry it was all so exhausting. We all went back to my room and waited, after a while everyone had left us in peace and to get some rest. Our baby girl was born at 7.40pm weighing 4 12 we didnt get to see her until 11.30  it was so horrible i just wanted her in my arms we named her indi faith dunkley she was the most beautiful tiniest baby girl id ever seen despite all her problems which were worse than what we thought. Her bowels didnt work, she had a hole in her bladder and half a working kidney which had to have a drain on it.

Indi faith was born 6 and half weeks early which of course added more complications she was extremely poorly the first week she was on a ventilator and we was told she may not make it through, there was nothing we could do other than sit by her incubator hoping and praying she would pull through after a long 5 days she came off her ventilator onto high oxygen which was a massive step all the doctors were amazed by her progress i always knew she would fight as much as she could by now 11 days had passed and we finally got to hold our beautiful baby girl it felt like holding a dolly where she was so small but it was a very special unforgettable moment. A few weeks went by indi faith got moved from intensive care into high care where they put her on low oxygen which she slowly came off. We were all so proud of how far she had come already she had 3 blood transfusions and 2 operations but with her first operation she become very poorly again as she developed an infection stopped breathing and was back on a ventilator we knew there was going to be good and bad days. Indi faith was always a brave happy baby she barely cried but when she did it wasnt for long, a few days later all the doctors sat us down for a meeting they said indi had got through so much already she was about 8 weeks now. The final straw came when indi couldnt digest her milk to which she developed liver failure so there was nothing more they could do for her as they hoped she would reach a certain weight to be able to start the transplant she needed. We also got a second opinion by great ormond street who gave the same answer they said we should take indi home and create some nice memories with her, after a week we finally made the heartbreaking decision to bring her home it took 2 weeks to organise everything as we needed equipment at home i also had to learn a few things aswel and we got help from community nurses all our family and friends so we wernt alone.

We finally took indi faith home on friday 18th january 2013 the day of heavy snow luckily my dad had a 4 x 4 to get us home safely. we had alot of visitors for the next 4 days while the snow cleared up. Our little madam only slept in her moses basket for one night then slept on my chest for a week straight but i loved it as we both just fell asleep together. Me and sam took our daughter out in her pram for the first time and went for lunch it was a lovely normal day, we also had a family photoshoot too which was great as we dressed indi faith up in a gorgeous blue and white frilly dress.

We knew by tuesday 29th january it was time for us to go to chestnut tree house hospice which was for terminally ill children for respite and families to spend extra sepcial time with their loved ones, so we went the next day. On the thursday we got to take indi faith swimming in a specially heated pool which she loved like all of her baths too and we also spent some time relaxing in a sensory room.

I woke up on friday 1st febuary 2013 not that i got much sleep there but i knew that morning the time had came and we would soon lose our whole world, indi was so fragile we couldnt even pick her up so we laid her on a comfy pillow where she slowly took her last breath that evening at 6.50pm crushing our lives forever. Experiencing all what we had made us realise there are so many of other families & babies in need of help and that is why we are doing this its all for an amazing cause.

Thank you to anyone that has taken the time to read my story and donated it means so much to me my family and friends anything helps. Thank you

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