SkinDeep - raising money for The Ichthyosis Support Group

Why this project 

On the 31st July 2010, Mekhi Barbour, to everyone's complete shock was born with a rare genetic skin disorder which currently has no cure.

As it is so rare, the government do not provide research funding for this condition, so it is our job to raise awareness and funding.

Mekhi has to be creamed every 2 hours to prevent the skin from drying out and cracking. We bathe him twice a day, soak his skin and exfoliate to remove excessive skin and prevent infections.

It almost feels that I am living in medieval times as we have to go through this process that takes hours a day, creaming and scrubbing his skin.

The Ichthyosis Support Group do a fantastic job in raising awareness, providing support and information to those affected and lobby for greater research into the condition.

It is the objective of SkinDeep to raise as much funds as possible through SkinDeep Fundraising – which encourages donations and sponsorships, often through sponsored activities completed by those keen to support our cause, and SkinDeep Events – in which we aim for at least one event to take place every month for your entertainment.

You may donate via this page, in person to a member of the SkinDeep team or by attending one of our events, details of which can be found via - 

www.facebook.com/theskindeepfundraisingproject

Thank you for your support and donation

Kindest regards,

The SkinDeep team and ofcourse, Mekhi!