My story

Eight years ago, at the age of fifteen, I was diagnosed with Multiple Sclerosis following episodes of numbness and double vision. When I was given the news I had no idea what MS was and how it could affect my life. After reading up on MS I was scared and found my diagnosis very hard to accept.

Multiple Sclerosis is the most common progressive neurological condition affecting young adults, with diagnosis generally between the ages of 20 and 40. In Scotland, there are around 10,500 people with MS - more people per capita than anywhere else in the world. MS is the result of damage to the myelin - a protective sheath surrounding nerve fibres of the central nervous system. When myelin is damaged this interferes with messages from the brain and other parts of the body causing a wide range of symptoms including fatigue, mobility issues and problems with co-ordination.

I decided during December 2010 that I wanted to set myself a difficult and meaningful personal challenge. I was very keen to test myself and to raise money for the MS Society in the process so I decided to take up distance running. I was also aware of many negative stories about MS and I became determined to create my own positive story. 

I have now participated in three events to raise money for MS Society Scotland. They are: 

1) Inverness half-marathon (13th March 2011) (2 hours, 22 minutes)

2) Loch Ness marathon (2nd October 2011) (4 hours, 58 minutes)

3) Inverness half-marathon (11th March 2012) (2 hours, 6 minutes) 

Unfortunately due to other medical issues I have been unable to run at the moment as I await an operation. Instead, I have still been actively fundraising and raising awareness of MS through social networking. I regularly raise awareness of MS through my Twitter account @MS_marathon and this, I feel, has really helped raise the profile of MS and also put me in contact with many fantastic people who have been a great support to me. When I return to running I have various aims I would like to achieve.

I cannot emphasise how important the day I ran the marathon has been to my life with MS. That day was probably the most important in my life and was a point where I really accepted my diagnosis, something I had struggled with from the outset. Being so young when I was diagnosed made me feel that I had to grow up fast and had a lot of worries about the future. I feel more positive about the future. I am receiving a drug called Tysabri once a month by infusion at my local hospital which has really helped keep my MS under control. I have been on the drug for three years now and, unlike other treatments I have had in the past, seems to be working well for me.

There is currently no cure for MS. For some people, MS is characterised by periods of relapse and remission while for others it has a progressive pattern. For everyone, it makes life unpredictable. 

The MS Society depends entirely on charitable fundraising and the support of the public and volunteers to be able to do their work.

Your donation can help in so many ways, for example: 

- A donation of £10 would help provide vital information leaflets about MS and could fund a much needed call to the MS Society helpline.

- A donation of £15 would pay for an hour of MS research time.

- A donation of £20 would help fund the cost of someone receiving 24-hour nursing care at the respite care centre.

- A donation of £25 could fund 100 copies of the 'What is MS?' booklet.

- A donation of £30 would help towards the running costs of the MS freephone helpline.

- A donation of £50 would contribute to the individual support grant programme that provides mobility aids, adaptations and equipment and could pay for a day's training for a volunteer helpline officer, who make sure people affected by MS have someone to talk to.

You can also now donate to my fundraising page using JustTextGiving. Just text MSSR89 to 70070 followed by the amount you wish to donate. e.g to sponsor me £5, text MSSR89 £5 to 70070.

On the 25th Semptember 2012, I attended the MS Society Awards in London as a finalist for MS Young Person of the Year. I did not win the award but had a fantastic day and it was a great honour to be part of.

After an MS diagnosis it can be very easy to shut yourself away and not want to talk about it. When I was diagnosed I felt like this initially but then I gradually became more open with my family and my friends and I feel this support was extremely important. Also, as I said above, acceptance of MS is vital in helping you look forward. This took me many years but was a huge step in helping me to progress with my life. I would also advise anyone with MS to discuss possible treatments with an MS specialist nurse, have a good, healthy diet and also to try and exercise. Exercise, in particular, has been extremely beneficial to me.

Thank you very much for your support to this fantastic cause. Your donation truly means so much to both myself personally and, of course, to MS Society Scotland. Every single penny donated is very much appreciated and MS Society Scotland relies solely on charitable donations so please dig deep and support my efforts in supporting this great charity.

Your support can help change lives.

https://spogo.co.uk/community/stories/515035dce4b0c7df47e70f8e


http://www.mssociety.org.uk/get-involved/fundraising/fundraising-blog/I-have-MS-and-I-run-marathons

 

My updates 2

I have now raised £10,000 for MS Society Scotland (without Gift Aid). I am absolutely delighted with all the support I have received and want to say a huge thank you to the 634 people who have donated. My total amount raised (including Gift Aid) is £11,955.05. Thank you!

15/03/13 17:49

I had a brilliant time on Tuesday (25th September) at the MS Society Awards in Kensington, London. Unfortunately, I didn't win MS Young Person of the Year but met some fantastic people and it was a real honour to be a finalist. Thank you again to the people who nominated me.

27/09/12 19:36

My charity

MS Society Scotland

MS Society Scotland

Charity Registration No. SC041990

The MS Society works to enable everyone affected by multiple sclerosis (MS) to live life to the full and secure the care and support they need, until we ultimately find a cure.

Donations 776

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Good luck Stu on run number 3. I'm so proud of all your efforts

Donation by Dad on 09/03/12

£25.00

+ £6.25 Gift Aid

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Stu, you're simply a fantastic human being, and I'm thrilled to help you.

Donation by Bernie Cicirello on 08/03/12

£90.00

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Come on Stu! x

Donation by Alison Chapman on 06/03/12

£10.00

+ £2.50 Gift Aid

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Good luck sweetheart! x

Donation by Anonymous on 05/03/12

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Hi Stuart I hope you reach your goal, you show great strength to people all over the world who suffer with MS a true star.

Donation by Anonymous on 03/03/12

£10.00

+ £2.50 Gift Aid

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Thank you for doing such good work. My Mum lost her battle against MS last year after suffering for 35yrs.

Donation by julie McEvoy on 03/03/12

£10.00

+ £2.50 Gift Aid

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My dad has ms .good luck with the marathon.

Donation by Karl French on 03/03/12

£15.00

Donation by jackie stephen on 01/03/12

£10.00

+ £2.50 Gift Aid

Donation by Kirstie Penman on 27/02/12

£10.00

+ £2.50 Gift Aid

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Great cause, inspirational story! See you at the half next year?!

Donation by Kevin McKnight on 26/02/12

£10.00

+ £2.50 Gift Aid

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For turning down the S*n. Top marks and good luck :)

Donation by Carol Phillips on 25/02/12

£5.00

+ £1.25 Gift Aid

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I hate odd amounts!

Donation by Linda Campbell on 24/02/12

£14.00

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Donation by Pam on 01/12/11

£5.00

+ £1.25 Gift Aid

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Donation by Stu (J. Burgess - Work) on 22/11/11

£20.00

+ £5.00 Gift Aid

I am donating because I know someone with MS.

Donation by Margaret Gillies on 20/11/11

£10.00

Just a cheeky top up. Still proud mate x

Donation by J Rose on 08/11/11

£14.60

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Donation from Andrew's 50th birthday party.

Donation by Stuart Rose on 07/11/11

£350.00

+ £87.50 Gift Aid

you are a true inspiration mate. hope it raises great awareness.

Donation by vishal chawda on 07/11/11

£5.00

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My Dad has had MS for 18 years. I know how devastating the illness can be. Absolutely amazing achievement, for a great cause.

Donation by adam newman on 23/10/11

£20.00

+ £5.00 Gift Aid

Well done. You're an inspiration.

Donation by The Frasers on 15/10/11

£25.00

+ £6.25 Gift Aid

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Donation by Dave Berry on 14/10/11

£25.00

+ £6.25 Gift Aid

What an achievement!! Well done!!

Donation by Andrew Jones on 08/10/11

£10.00

+ £2.50 Gift Aid

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Donation by Stu (J. Johnston - Work) on 07/10/11

£10.00

+ £2.50 Gift Aid

text donation

Donation by Anonymous on 07/10/11

£2.00

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Donation by Stu (R. Steel - Work) on 06/10/11

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations$17,870.69
  • Offline donations$15.18
  • Text donations$602.47
  • Total raised$18,488.34
  • Gift Aid$3,630.93

* Charities pay a small fee for our service. Find out how much it is and what we do for it.