Archie-Theo is like any other 2 year old, the only difference between him and other children is he has a rare life threatening condition called Spinal Muscular Athrophy.

Spinal Muscular Athrophy is a rare genetic condition that affects only 1 in 6,000 - 10,000 people in the UK and is the number 1 gentic killer in infants and children. It is caused by a missing gene called SMN1 which produces the protein which motor neurons need to surive. The condition causes scoliosis of the spine which often leads to having major spinal surgery, it also often causes servere respiratory problems meaning chest infections can be fatal if not treated quickly.

Archie was diagnoised with SMA type 2 when he was 20 months old, before then he could crawl and stand unaided now his day to day routine consists of many different types of physiotherapy to help him countinue to be as strong as possible.

Archie's determination amazes us every day and we already have planned alot of events to fundraise in 2014.

The SMA trust is the only UK charity who souly raises money for research into finding a cure for Spinal Muscular Athrophy.

TOGETHER WE CAN SMASH SMA & HELP SAVE A LITTLE LIFE LIKE ARCHIES!