Thanks For Visiting Baby Tommy's Fundraising Page updated 01/05/08 @ 16.30hrs Tuseday 29th April was the 1st anniversary of when our baby boy Tommy sadly passed away. In Tommy's memory we have had a Star named after him. Royal Mail, Bolton are organising a series of fundraising events over the next 3 months to help raise funds in memory of Baby Tommy. Your support is greatly appreciated - further information to follow.Baby Tommy our baby boy Tommaso, (Tommy), Peter D'Attorre, sadly passed away on the 29th April 2007 at the tender age of 3 months 12 days after being diagnosed with Type 1, Spinal Muscular Atrophy, (SMA) - see news articles: Rare disease claims life of baby Tommy, Search must go on for cure of genetic disease and Tribute of love for 'our angel' Tommy. Poem "Our Tommy" a bud the gardener gave us, a pure and beautiful child, he gave him into our keeping, to cherish undefiled. And just as the bud was opening to the glory of the day, down came the heavenly gardener, and took the bud away. He gazed among the little ones, then stooped to pick the best, Our Tommy was the chosen one, in Heaven now he rests. All the angels hovered around him, this blossom before their eyes, so wondrous, fair, so beautiful, so fit for paradise. Our arms are very empty now, our hearts so full of grief, for us, who loved each day with him, now find those days so brief. So now, we trust him to God’s care and know some day once more, we will hold him in our arms again, when we open the garden door. Our Tommy was a little flower just lent to us for a while, now in our hearts he will remain this pure and wondrous child. Margaret Phelan, (Tommy's Grandma), May 2007 Spinal Muscular Atrophy, (SMA) is a genetic disorder with no current treatment or known cure and is the leading genetic cause of infant death under 2 years old in the UK today and in many other countries throughout the world - approximately 1 in 40 of us carry the rouge gene. For more information please visit www.jtsma.org.uk (UK), www.famigliesma.org, (Italy), www.fsma.org / www.curesma.org, (USA) or www.iasma.net, an international alliance linking all the main SMA organizations globally.Tommy's Angel Fund in memory of Tommy we have set up Tommy's Angel Fund via the Jennifer Trust for SMA. This fundraising page will help us raise funds for this worthwhile cause and we would appreciate it if you and anyone else you know could make a donation and forward this link on to people you know. Donating through this site is simple, fast and totally secure. It is also the most efficient way to donate: the Jennifer Trust for SMA will receive your money electronically and, if you are a UK taxpayer, an extra 28% in Gift Aid will be added to your donation at no cost to you - please donate generously and let others know. Fundraising Events & Donations a series of fundraising events have been/are being organized to help raise additional funds and to increase awareness of this deadly disorder. Bolton Hockey League fancy dress 7-aside hockey tournament was held on Sunday 16th December 2007 at Eagley Cricket Club, Dunscar, Bolton for the Tommy's Angel Fund Memorial Trophy. There was also a Christmas fair with cake stall, raffle, tombola, party hair, gifts and much more."Baby Tommy's" Celebrity Auction Charity Night was held on Saturday 15th September 2007 in the Premier Suite at the De Vere Whites Hotel, Reebok Stadium, Bolton. The guests were treated to a fantastic night of entertainment with the highlight being a special performance by Peter Kay and an aray of sporting personalities including El- Hadji Diouf, Amir Khan and 13 times world darts champion, Phil the Power Taylor who helped raise well over £10,000 for Jennifer Trust and Derian House. Thanks also go to the Morgan School of Irish Dancing, Decade Explosion and De Vere Whites for putting on a great show that will be remembered for a very long time - click here to see interview on Granada Reports. Christ Church School, Ainsworth are raising money for Tommy's Angel Fund more details to follow. In the meantime teacher Mrs Hicks has passed on £4 from pupil Eamonn Downes who has very kindly donated his pocket money and is very much appreciated. The 2007 BUPA Great North Run - David Sidaway, a good friend, is taking part in this years Great North Run on 30th September 2007 to raise money for Tommy's Angel Fund and would really welcome your support. When sponsoring him please make a note in the comments that it is relating to the Great North Run. He say's "I am not very fit at the moment (no comments please) and considerably less fit than when I completed the London Marathon but I will get around the course even if I have to crawl!". Good luck David.Mecca Bingo, Moor Lane, Bolton held a Fund Raising Free Draw organised by Linda McLoughlin on 03rd September. A big thank you goes to David Barker, all the staff and customers for their help and support and for raising £270 + £6.67 in collections. Sam Smith & Excellent UK Ltd in Blackpool organised a Charity Car Wash on Saturday 8th September 2007, they were committed to donating £1 from every car wash to The Jennifer Trust for Spinal Muscular Atrophy in memory of Baby Tommy - a total of £224.40 which included donations was raised and a big thank you goes to everyone who contributed. 3 Peaks 3 Day Challenge: the lads orgasnised a 3 Peaks 3 Day Challenge last June, organized by Paul Stallard and Carlo D'Attorre, which involved climbing the highest mountains in Scotland, (Ben Nevis), England, (Skafell Pike), and Wales, (Snowdon). Special thanks go to Mark Fogg, Abstract Limited for donating the Baby Tommy t-shirts for the lads to wear and Cheryl Ashton, Gordons Ford for donating the mini bus. As well as Paul, Carlo and I, the others who took part were Walter Stallard, Lee Curren, Graham Richards, Neil Warburton, David Little, Mark Bateman, Ian Scupps, Ian Bunday, Tom Donnegan and Andy Taylor - see news article: Mountains challenge in memory of Tommy and Tommy T-shirts.Designer Car Boot Sale & Croagh Patrick: not to be out done, Siobhain and the girls organized their own events. The first a Designer Car Boot Sale organized by Denise Morledge with help from Siobhain, Jeanette Haslam, Joanne Ford, Julie D'Attorre ,Francesca D'Attorre and Romana D'Attorre with a big help from Andy Mills at the Bolton Market last June. Croagh Patrick; in addition, Siobhain organized a climb up Croagh Patrick in Ireland on Reek Sunday last year. Those who took part included from Bolton - Siobhain, Janine Fogg, Paula Cain, Jeanette Haslam, Marie Starkie, Aleisha Starkie and Denise Morledge and from Tuam in Ireland - Michelle Concannon-Gleeson, Caroline Gleeson, Teresa Fitzpatrick, Kerry Phelan, Louise O'Connor, Margaret Phelan, Bridie Walsh, Denise Murtagh, Denise Gleeson, Norma O'Rourke & Eileen, Pauline McGough, Petra McGough, Margaret Concannon, Kathleen Varley, Aisling Mulryan, Sinead Gaughan and Moira Gleeson. Collection: Romana's cousin Farrah Stallard who goes to Church Road Primary School sent me this email which read "hi it's farrah, i have been raising money for tommy and so far i have raised £34.80 if i have added correctly. i will carry on raising money for him and collect the money soon i also will give from me £37.50 and maybe £10.00 if i save up i willl ask more people at school and hopefully raise enough money x i love tommy xxx - full details to follow when she returns to school. i have wrote tommy a poem i will print it or post it to you by email it your choice xxxxxxxxxxxxx farrah xxxxx". hi its farrah xxxxx this is my "Poem to Baby Tommy" also did you get my picture of Tommy the one with the cute big dummy? ts so cute xx. Tommy now it's time to say good bye and sleep in peace forever, You never met your grandad Tom but now you will be, So spread your wings apart and sing come to me, Dont be scared grandad Tom and you can stay together, Your star will shine brightly, Sing your songs heavenly and be very brave ,for mummy and daddy will visit your grave, Your smile was beautiful your etes were bright, Even though you had SMA you still put up a fight.You couldn'ty move your legs and arms, But still you had your baby charms,You were the most beutiful baby i had ever seen, If i could turn back time i would make you have more time to lie, But most of all i would produce a cure, Your family loves you espacially I, I wish you could live and not sadly die. xxxxx farrah, (age 11) Ps.did you get my pic of Tommy plz write back Thank You Online Donations: thank you to all those who have donated so far towards the various fundraising events listed above - the response has been incredible with donations coming from family, friends and people we have never even met from around the world including UK & Ireland, Turkey, Norway, USA, Canada and Australia. Tommy's Angel Fund/JTSMA Offline Collections/Donations: thank you to Mollie Gallagher & Family, Paul Norburn, David, Liz, Oliver, Charlotte, Anonymous, Mums and Tots group at Westhoughton Parish Church, Claddagh Hair Customers, Janet Owen, Elaine Simkin, (Cuttin' It Customer), Olympus Fish & Chip Restaurant, Marie Gordon, Dr A J & Dr R L Porter, Dualco Promotion, Leo & May, Richard Coulthurst, D & M Winstanley, Dougie Mercer/motox365.com, Simon & Zoe Gough and Braymale Limited t/a North Western Employment Services for donating £1247.87 in total. Thanks also go to T.D. & C.O. Murphy, Bernie & Brian at Golden Brown Tanning Studio, Nicoleta & Alina, L & D Donlan, Anonymous, S & M.W. Gibson, Peter, Tracy, Beth and Abbie Phelan,Bellissimo, Tracy & Alan, Christopher McLoughlin, Bank of New York, Ring A Bling, Mairead Williams, SS Osmund & St Andrews RCP School, Celebration & Floral Creations, Eammon Downes, Christ Church and Rijo 42. 3 Peaks 3 Day Challenge Offline Donations: thank you to David Lord, Jennifer Matthews, Gareth Fowler, Neil Mathieson, Keir Edmondson, Gordons (Bolton) Limited, Drivers & Parts Dept, Janet Grundy, D. Pearson, (Intact), and Lee Curren and his sponsors for donating £348 in total to date. Croagh Patrick Offline Donations: thank you to Carole Harrison, Anne Burke, Ruth Butcher, Sylvia Diddle, Teresa Fitzpatrick, Michelle Concannon-Gleeson and all the fundraiser's in Ireland, (4630 euros), Denise Morledge and all her sponsors including Motel London in Turkey and Paula Cain and all her sponsors for donating £3,651.95 in total to date. Howarth's Funeral Service who conducted Tommy's funeral held an Open Day on the 14th July 2007 and everyone had a fun filled day with the highlight being the ride in a mourners' carriage pulled by two pairs of black horses . Fundraising events took place throughout the day and included tombola, guess number of balloons in limousine, flowers raffle, BWFC raffle, horse drawn carriage and refreshments - special thanks goes to John Howarth for nominating Tommy's Angel fund to be the beneficiary of all proceeds which totalled £414.84. Friends David and Emma held a Baby Tommy's Teddy Bear Party for the kids at their home in Westhoughton, Bolton in July and raised £238.53. Cake Stall: Tommy's cousin Romana with the help of Nona Enza, (doughnuts), organized a fundraising event with her friends and Mrs Grant from her school, Holy Infants RC, Bolton. Romana sent me this email: Heya Ralph , Just to let you know i am organising a cake stall at my school on Wednesday 18th of july with a few friends to raise money for Tommy . Also today ,and maybe over the summer if the sun shines! me and farrah are going to do a cake sale on moss bank park when we are off school and might be doing one on the street today luv u ralph xxx - a total of £50.97 was raised, well done Romana. This is my BEAUTIFUL baby cousin Tommy i love him so much. He entered the world on 17-01-07 and left on 29-4-07 he is very much loved and i can never forget the smile he put my face all the time and his BIG beautiful eyes he had a disease called sma spinal muscular atrophy R.I.P tommy x xx xx xxxxxx xx i will never ever forget you and you will always be in my thoughts here is a poem i made for baby Tommy xx Tommy i always bow my head in thought and thank god for the angel he brought. Even though you had sma you are still the beautifullest baby today. I love you lots and i want to say you put a smile on everyones face rest in peace you cute little cousin out of all the babies you are the cutest out of a dozen R.I.P xxxxxxxxxxxxxxxxxxxxxxx
Reception Class yr 1 & 2, (4-7 year olds), boys and girls at Bowness CP School raised £112.43 from parents. grandparents, other family members and friends during two showings of their infant production of Stella the Starfish earlier this year. Unbeknowns to me, deputy headteacher Carol Yates saw our newspaper article and wanted to raise money for Tommy's Angel Fund - the first I knew about this was when Mrs Gooddy phoned to ask were the cheque needed to go, we were very touched and extremely grateful. A very sore and aching Liamo has managed to finish the annual Galway Walking Clubs 11th Anniversary marathon walk from Killary to Maum Bridge on Saturday 11th August 2007 - all 26 miles of the Western Way in Connemara Marathon Walk in the wind and rain over roads, mountains, valleys, hills and very wet boggy farmland! He has a certificate and blisters to prove it for the non believers!! He's still collecting moneis and will update us with the final amount in due course. £66.46, (100 euros), has already been banked with a further 600 euros to follow - well done Liamo Derian House Children's Hospice Offline Donations: in addition to raising funds for SMA, £370 + £2,840 has so far been donated by friends and family to Derian House Children's Hospice, Chorley, were we spent our last days with Tommy before he passed away peacefully in our arms - thanks for these donations go to S & M W Gibson, Mr & Mrs J Gargan, Mr & Mrs Longthorne, Mr & Mrs D Roberts, Miss A M Gargan, Mrs M Costello, Mrs S M Flahavan, A & C Yates, S Diggle, Mr & Mrs W Houghton, Mr G M Fielding, Mollie Gallagher-Marr & Family, Paul & Lesley Southern, Mrs Jean Perkin, Pauline Strickland, Mr & Mrs John Gleeson & Family, Mrs L Wain, Michael, Pat, Tricia, Andy, Ivan, Marie, Stephen & Karen and charity night raffle. Support & Help: a big thank you to each and every one of you for all the support and help you have given us from the time Tommy was diagnosed - as you can imagine the list is endless and which so far spans the UK & Ireland, Italy, Germany, Turkey, Norway, South Africa, Argentina, USA, Canada and Australia but we will endeavor to compile that list as we go along. Further Details Further details and updates on all the above plus news of other planned events will be posted/emailed as and when they become available. If you have any suggestions, comments or would like to help or take part in anyway, please let us know by email rda@rda247.com or call us on m.GB +44 7786844111 Call. Many thanks to you all for your donations and support, its very much appreciated. Siobhain & Ralph.xx (Tommy's Mum and Dad)
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