Raised: 81%
Target: £200,000.00
Raised so far: £161,581.03
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My story

 

STOP PRESS:

We are grateful to Jeff Hird of X-Liesure for his support and sponsored slim.  He raised the magnificent sum of £2135 which was presented to us at the tenants meeting on the 1st December at their Christmas party.  Many many thanks to Jeff, his staff and all those who contributed to his efforts.  Tony & Susan and Family, especially Edward.

Many thanks to K D Decoratives Ltd for their kind donation of £4400 and their continued support.  Thanks to Richard,  Gloria and David, Matthew and James for their outstanding generosity.      

We can't thank Richard, Gloria, David, Matthew. James and Jeff enough for their help, not forgetting Stephen Brogan who was instrumental in introducing us to these fabulous people.

HURRAY, we have  surpassed our target of £150,000! .   Thanks to all who have supported us over the passed 2 years. We could not have done it without you.  We have been staggered by the phenomenal support we have had and can't thank people enough.  So far most events have been complete sell outs.

We raised over £20,000 at the two dinners we held in November and December 2008. 


Our 3rd Annual Dinner and dance is to be held at the White Hart Hotel on the 7th December.  Tickets priced £35 are still available from Susan Ackroyd.  Email sackroyd@mac.com


Sponsored walk across Morecambe Bay was held on the 15th August 2009

The walk raised £2358.50 towards funding clinical trials and further research.



 

A new target will be set which we believe CAN be achieved with the support of all our friends and relatives and hard work by the fund raisers.


If you haven't already, please visit (www.sayhellotoedward.com) You can still view the music video, " Never Say Goodbye," produced by some of Edward's incredible friends, as well as keping up to date with our campaign.


The money raised so far has enabled the charity to start funding a research programme at Oxford University.  We hope by this time next year to have some result and proceed to clinical trials sometime thereafter.  This could not have been achieved without your support.


Edward, our 6 year old grandson who we believed to be a perfectly healthy child, was diagnosed in May 2007 with Duchenne Muscular Dystrophy; a degenerative and as yet, incurable muscle wasting disease.

Duchenne Muscular Dystrophy (DMD) affects 1 in every 3,500 boys born. It can also affect girls, although this is very rare.
Children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. THERE IS NO CURE.

For the moment, Edward is a lively, child who adores life and doing everything that an active 5 year old enjoys. While the disease has yet to show its devastation, the stark facts about DMD are hard to believe:
DMD has a 100% fatality rate; on average DMD boys die in their late teens or early twenties; most boys with DMD are in a wheelchair from age 10-12 years old;  DMD is associated with respiratory failure, heart failure, and debilitating orthopaedic complications.


The money raised by us will go towards funding critical research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. ACTION DUCHENNE - Cure Duchenne Muscular Dystrophy (www.actionduchenne.org) is a registered charity and funds vital research.  We are a small charity run by the parents for the benefit of their children with  all monies but essential expenses, going into research.  

If you prefer to donate offline can send a cheque to the charity at ACTION DUCHENNE Epicentre 41 West Street London E11 4LJ

WE NEED YOUR HELP. WITHOUT A CURE THERE IS NO HOPE FOR ANY BOY WITH DMD. PLEASE GIVE GENEROUSLY

Many thanks for your kindness in making this donation.

To help with your fight Donation by Mrs. Kay Speed 18/04/08  

£100.00 + £28.21 Gift Aid

we will get there little man Donation by colincrawford 15/04/08  

£100.00 + £28.21 Gift Aid

Many thanks to friends from Lent course (CTiS) Donation by D P 14/03/08  

£23.00

A2 Accident Solicitors Donation by maisie 14/03/08  

£23.00 + £6.49 Gift Aid

Best wishes Donation by John & Eva 12/03/08  

£5.00

Kind donation from G Vinge, thank you. Donation by Paul Ackroyd 12/03/08  

£25.00

Kind donation from Mrs M Whitehead, thank you. Donation by Paul Ackroyd 12/03/08  

£100.00

Kindly donated by Kate, Dave f& Archie for set of drawers Donation by Paul Ackroyd 12/03/08  

£25.00 + £7.05 Gift Aid

Good Luck Donation by Anonymous 06/03/08  

£5.00 + £1.41 Gift Aid

Let's put all our trust in God. Donation by M & D 24/02/08  

£10.00 + £2.82 Gift Aid

Good luck with everything Donation by Christine & Peter 22/02/08  

£10.00

Donation by Anonymous 22/02/08  

£5.00 + £1.41 Gift Aid

Best wishes Donation by michael warrington 21/02/08  

£25.00 + £7.05 Gift Aid

In memory of a wonderful Mum xxx Donation by Tony & Susan 20/02/08  

£200.00 + £56.41 Gift Aid

INTERIM sales of TV QUIZ (please contact me if you'd like some) Donation by Susan Ackroyd 20/02/08  

£79.00

In memory of our Grandma Rose xxx Donation by Daddy 19/02/08  

£100.00 + £28.21 Gift Aid

in memory of my dear sister-in-law Rose with love. Donation by constance 19/02/08  

£100.00

from A2 Donation by Paul Ackroyd 15/02/08  

£20.00 + £5.64 Gift Aid

Love from Daddy, the fight goes on....!!! Donation by Paul Ackroyd 13/02/08  

£400.00 + £112.82 Gift Aid

Donation by jim lb35 ckb boards 06/02/08  

£175.00 + £49.36 Gift Aid

From Stu LB37 CKB Boards Donation by kermitstu 06/02/08  

£50.00

From Stu LB37 CKB Boards Donation by KermitStu 31/01/08  

£50.00

From Matt LB36 CKB Boards Donation by Matt 29/01/08  

£175.00 + £49.36 Gift Aid

A2 Accident Solicitors Donation by Mary Theresa Scholes 22/01/08  

£20.00 + £5.64 Gift Aid

Many thanks for the donation of your pocket money Donation by Adam & Isobel 10/01/08  

£3.00

Very best wishes to the Ackroyd family. Donation by Graham Bonser 10/01/08  

£50.00 + £14.10 Gift Aid

Hope Saturday Goes Well. Damian Donation by Damian Cunningham 09/01/08  

£50.00 + £14.10 Gift Aid

Donation by Pete Walmsley 03/01/08  

£10.00 + £2.82 Gift Aid

Thanks to Paddy Walsh - Keep up the good work Donation by Ian & Liz McCaul 03/01/08  

£500.00 + £141.03 Gift Aid

Happy Xmas to Edward & the Ackroyd Family - in lieu of cards Donation by Cousin Jane 25/12/07  

£101.00 + £28.49 Gift Aid
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* Total raised online: £16,352.22
  Offline donations: £145,228.81
  Gift Aid plus supplement: £3,569.50

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