Dan Long

Dan's Daytona 24 Hour Love Charity Stream

Fundraising for Alport UK
£20
raised of £200 target
by 3 supporters
Donations cannot currently be made to this page
Alport UK

Verified by JustGiving

RCN 1154774
We empower families with Alport Syndrome to enjoy the best possible quality of life

Story

Thanks for taking the time to visit my JustGiving page. I am going to be participating in the iRacing Daytona 24 hours on the 19th and 20th of Jan  I aim to stream the majority of this race, whilst hopefully finishing! 

I'm hoping that whatever is raised from this can help towards going to research in to this extremely rare and unique condition. 

I've suffered with Alports Syndrome my entire life, a rare condition which effects the Kidneys, but can also cause deafness and problems in the eyes. Alport UK are a fantastic charity which are passionate about helping to help and change the lives of those suffering with Alports.

Follow my stream: www.twitch.tv/danboy360 

Stream will be beginning at 2pm GMT!

There will be perks such as being entered in to a raffle if you donate a certain amount, as well as being in with a chance to go on my virtual 'Wall of Fame' to anyone who donated whilst the stream is live.

Alport syndrome is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. People with Alport syndrome experience progressive loss of kidney function. 

About the charity

Alport UK

Verified by JustGiving

RCN 1154774
Alport UK is a patient-led charity dedicated to facilitating a support and information network for all those affected by Alport Syndrome. Our Vision is to ensure that all individuals and families with Alport Syndrome feel empowered to enjoy the best quality of life.

Donation summary

Total raised
£20.00
+ £1.25 Gift Aid
Online donations
£20.00
Offline donations
£0.00

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