DEBRA Ireland provides support services to patients and families living with the debilitating skin condition epidermolysis bullosa (EB). Babies born with EB are missing the collagen (glue) that binds the layers of skin together. This means their skin is very delicate and blisters easily. Currently there is no cure and the only form of treatment is painful bandaging of the skin to prevent infection. My amazing nephew Jimmy (age 7) was born with EB so Debra Ireland is a charity close to my heart. That's why I am running 50 miles / 80 kms this Feb in support of them. Any support you can give is gratefully received! 

DEBRA Ireland is dedicated to driving and supporting research into effective treatments for EB and, in the meantime, to doing everything possible to alleviate the difficulties experienced by people living with EB. There are currently 300 people living in Ireland with the condition. DEBRA Ireland provides support not only to them but to their families who regularly act as carers. For more info visit debraireland.org