Ann Mallon

Ann's Kbc Virtual Dublin Marathon page

Fundraising for BBS UK
£3,180
raised
by 87 supporters
Donations cannot currently be made to this page
BBS UK

Verified by JustGiving

RCN 1181244
We support people with BBS to to understand their condition and thrive

Story

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Hi all,
I'm running the Virtual Dublin Marathon on 23rd October 2021 and Fundraising for BBSUK..
A very special wee boy called Charlie Woods was diagnosed with Bardet Biedl Syndrome in December 2020
The charity BBSUK have being a great support to Charlie's Family.
Bardet-Biedl Syndrome is very rare condition which affects many different parts of the body, kidneys, heart complications, development delay, but most devastating is progressive Loss of Vision..
There is currently no cure for Bardet-Biedl Syndrome.
For further information about the charity and Bardet Biedl Syndrome click on link below
http://www.bbsuk.org.uk/

About the charity

BBS UK

Verified by JustGiving

RCN 1181244
We support people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK. We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.

Donation summary

Total raised
£3,179.52
+ £227.50 Gift Aid
Online donations
£3,179.52
Offline donations
£0.00

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