Story
Thanks for taking the time to visit my JustGiving page.
Hi all,
I'm running the Virtual Dublin Marathon on 23rd October 2021 and Fundraising for BBSUK..
A very special wee boy called Charlie Woods was diagnosed with Bardet Biedl Syndrome in December 2020
The charity BBSUK have being a great support to Charlie's Family.
Bardet-Biedl Syndrome is very rare condition which affects many different parts of the body, kidneys, heart complications, development delay, but most devastating is progressive Loss of Vision..
There is currently no cure for Bardet-Biedl Syndrome.
For further information about the charity and Bardet Biedl Syndrome click on link below
http://www.bbsuk.org.uk/