Story
In September 2018, a team of amateur cyclists; James Hopkins, Jon Sweet, David Seabridge and Jerry Lane from BCA Fleet Solutions are raising money for Ataxia Telangiectasia (A-T) a rare, neurodegenerative, inherited disease that affects many parts of the body and causes severe disability. We are heading for the Alps and the iconic Alpe d’Huez, embarking on a two day, 150 mile cycling challenge that culminates in the iconic 21 hairpin bend, cycling up one of the most revered mountain stages of the Tour de France. This will be as much an emotional challenge as it is physical challenge, therefore we are seeking your support to raise money for this worthy cause.
A-T is progressive and affects the cerebellum (the body's motor control centre) and, in about 70% of cases, weakens the immune system as well, leading to respiratory disorders. The condition first shows itself in early childhood, i.e. the toddler stage. The symptoms are lack of balance, slurred speech and perhaps a more than normal number of infections. All children at this age take a little while to develop good walking skills, coherent speech and an effective immune system so it may be some years before A-T is properly diagnosed. On top of the severe physical disabilities children with A-T must face, 1 in 4 children with A-T will develop cancer or sever lung disease and more than half will die before they are out of their teens.
About Action for A-T visit www.actionforAT.org
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Many thanks
James, Jon, David & Jerry - Team BCAFS