Story
Thanks for taking the time to visit our JustGiving page.
As many of you might already know, our daughter Viola suffers from NF1. Unfortunately there is no cure for this genetic disorder and we would like to do as much as we can to aid research into finding one.
Viola is affected by NF1 by having a bowed and brittle tibia. She will need corrective surgery at some point in the future, but in many cases the bone does not heal. In some cases, after repeated surgery the only solution is amputation.
NF1 is a very unpredictable condition. It can cause:
Blindness
Cancer which can be fatal
Learning disability
Disfigurement
So please help us and Viola find some hope.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Many thanks from the bottom of our heart,
Peter&Barbara