Our grandson Ollie was diagnosed with E.B when he was born  9 years ago. We had never heard of the condition or realised how our lives would be changed forever. We would like to help make people more aware of E.B and help with fundraising towards research etc. Ollie is a very strong little boy, who everyday has pain but is always brave. Some days his skin is better than others but at any time he can have a knock, fall or just going too close to objects and up pops a blister. They usually have to be "popped" for the healing process to begin but he always is so brave.

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