Benita shaw

Benita's page

Fundraising for Action for XP
£130
raised of £200 target
by 10 supporters
Donations cannot currently be made to this page
Event: Asda Foundation Middlesbrough 10K, on 1 September 2019
Action for XP

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We fundraise for projects to improve lives of those affected by XP

Story

I am running to raise awareness for one of my students who has Xeroderma Pigmentosum (XP). A life long genetic condition where the person is allergic to Ultra Violet. Leo has to wear a protective visor, sunglasses and clothing daily to protect his skin. I want to raise awareness so adults and children are aware of this condition and understand that people need to wear these items to protect themselves. Teddington trust is the charity which supports families who have this condition and Leo is an ambassador for them. 

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About the charity

Action for XP

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We are dedicated to creating and funding projects to improve quality of life of those affected by Xeroderma Pigmentosum through the advancement of education, support of scientific advancements, provision of safe recreational facilities and promotion of equality and diversity.

Donation summary

Total raised
£130.00
+ £32.50 Gift Aid
Online donations
£130.00
Offline donations
£0.00

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