Bill passed away on 16 May 2016 following a short battle with catestrophic anti-phospholipid syndrome (CAPS) - a extremely rare condition which occurs in less than 0.01% of the population.

As the condition is so rare it is incredibly difficult to diagnose (Bill was diagnosed with CAPS only 1 week before his untimely death); however, with further funding and research it is hoped that the condition will become easier to diagnose so people do not suffer unnecessarily.

The Hughes Syndrome Foundation via St Thomas's Hospital, London helped to diagnose Bill's condition. Their mission is to save and improve the lives of patients with anti-phospholipid syndrome by achieving earlier diagnosis and the best possible treatment. They do this by:

- informing doctors, nurses and GPs about how to look for, test and treat Hughes/antiphospholipid syndrome
- raising awareness in the media and general public about the condition
- offering support and understanding to anyone affected by the illness
raising funds to provide support, education and research

With your support they hope to continue awareness campaigns and research so that people do not suffer unnecessarily. They do not receive any government funding and rely almost entirely on voluntary donations and legacies to fund our work.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Best wishes

Pat & Family x