Bruce Bloom

Running for a Rare Reason!

Fundraising for Cambridge Rare Disease Network
US$1,898
raised of US$1,500 target
by 24 supporters
Donations cannot currently be made to this page
Event: Saucony Cambridge Half Marathon 2020, on 8 March 2020
We are building a thriving network to support people affected by rare diseases

Story

Thanks for taking the time to visit my JustGiving page.   I have started running again after a 10 year hiatus, and no better way to motivate myself than Running for a Reason!  My sister and cousin have the same rare heart condition, and my nephew has Fragile X.  There are not cures for their conditions, but funding research can lead the way to treatments!!  Thanks for helping!!!

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About the charity

CRDN is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, and working together, we improve the journey towards better diagnosis, treatment and support for rare families.
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Donation summary

Total raised
US$1,897.39
+ US$6.48 Gift Aid
Online donations
US$1,897.39
Offline donations
US$0.00

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