Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

Cystic Fibrosis (CF) now plays a fundamental part to my life. There is no cure! Once diagnosed those affected are met with a reality that they have to manage their lives around this condition on a day to day basis. The more brutal reality is dispite doing everything they can to control the inevitable deterioration individuals lifespan can be cut very short. I’ve now experienced first hand how it has devastated individuals/families/friends leaving emotional scars that like the condition cannot be cured.

HOWEVER I’ve also experienced how (despite the above) individuals diagnosed can have an outlook on life that is inspiring! The appreciation that everyday is precious means you live life fuller something that can be taken for granted I’m sure you would agree??

The problem: Raising awareness about CF is crucial. Breakthrough in medications has been made but like most things in life it’s more about cost rather than the benefit. Raising awareness places more pressure on government and the department of health so taking 5 minutes to read my page is already making a difference so thanks! Sharing this link will make an even bigger difference so please put social media to good use and help me shout about Cystic Fibrosis and the Trust who are supporting individuals and families impacted by this condition. 

My challenge. I’ll be gritting my teeth and taking on a 24 hour endurance run supporting Harp 24 in June. I’m aiming for 70 plus miles this year so your support in sharing this link over the next 2 months helps me better prepare through rigorous training and disciplined diet. 

Thank you for reading/sharing and any donations is simply a bonus.

Last mention is to the individual who is the catalyst for all the above. You know who you are.....keep fighting, living, caring and loving. Nobody can comprehend your journey but like me people can benefit from your story x