Simon McGrath

Chris and Simon's Despicable Us Challenge

Fundraising for Niemann-Pick UK
£5,403
raised of £3,000 target
by 138 supporters
Donations cannot currently be made to this page
Niemann-Pick UK

Verified by JustGiving

RCN 1144406
We support people living with Niemann-Pick to improve & enhance their quality of life

Story

YOU'VE DONE IT! We're just two pillocks on a tandem who cycled 301 miles in four days. But you've all been brilliant with your hugely generous support and kind messages – so thank you from the bottom of our hearts.

We completed the challenge pretty much in one piece. As did our fantastic tandem complete with Minion Trev on the back. We were sore and tired but your unrelenting support means we've far exceeded our target. We simply couldn't have done it without you... Thank you so much on behalf of Simon, Chris and Jack's family.

To mark our 50th birthdays we're cycling 300 miles in just four days on a tandem – dressed as Minions. And we're doing it for a great cause.

We've been inspired to raise funds for NPUK by 16-year-old Jack, a member of our sons' youth football team who was recently diagnosed with Niemann-Pick Type C (NP-C).

NP-C is a rare inherited neurodegenerative disease. It is caused by a build-up of lipids (fats) in the liver, brain and spleen. The condition is gradually affecting Jack's motor skills, balance, speech and eye movements.

Football-mad Jack is a friendly and popular member of Long Buckby Stags Under 16s and has played with the team for 10 years. Despite the daily challenges he faces, Jack is determined to continue to train and play for the Stags.

His popularity was recently proven when Jack's team mates chose him to lead them out to collect their A League winners trophy at Sixfields Stadium.

Jack is currently on a clinical trial and takes fortnightly trips to Great Ormond Street Hospital in London for invasive and painful treatment. His unwavering strength, positivity and sense of humour is an inspiration to all those around him.

We're cycling our tandem from Scarborough to Weedon in Northamptonshire at the end of August, camping along the way with the generous support of Swift, the UK's largest manufacturer of motorhomes and touring caravans (www.swiftgroup.co.uk).

Thanks for taking the time to visit our JustGiving page – we really do appreciate all donations and support.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate – saving time and cutting costs for the charity.

Thank you for your generosity.

Minion Chris and Minion Simon (aka Despicable Us)

About the charity

Niemann-Pick UK

Verified by JustGiving

RCN 1144406
NPUK is dedicated to making a positive difference to the lives of people affected by Niemann-Pick diseases and their families. Our vision is a world where those affected can meaningfully participate in society, reach their full potential and achieve the best possible quality of life.

Donation summary

Total raised
£5,403.00
+ £728.75 Gift Aid
Online donations
£5,403.00
Offline donations
£0.00

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