Hi Everyone,

On October 2^nd I will be running the London Marathon for a charity that is very close to mine and my families hearts, Menkes Foundation UK.

I’m running in memory of my second Cousin Harry who sadly
lost his battle with Menkes Syndrome back in October 2016 when he was just 2 Years 11 Months old. He was a true fighter and the bravest kid I ever met.

I want my cousin Laura, his devoted mom and my Auntie Julie,
his adoring Nan to know that Harrys memory will always live on and I’m aiming to raise as much money as possible that will go towards helping another little boy who is fighting against Menkes every day.

Most people haven’t heard of Menkes Syndrome, I know I hadn’t. 

The reason for this is that it is very rare and gets little to no media attention, which means it gets very little funding. Menkes disease is a fatal illness in which the intestines are unable to absorb copper, depriving the brain and other tissues of this essential mineral. It is degenerative and claims young lives normally within their first ten years.

Children with Menkes often have very complex care needs requiring 24hr a day love and attention.

Today as I write this there is no cure and the diagnosis will often come too late for any effective treatment to take place.

I know running a marathon will not change the world, but what I do know is that every single penny raised will go towards helping another boy who is fighting against Menkes. It will pay towards his care, allow him to spend a day doing something he loves, or even assist his family whilst they face their own daily challenge alongside their child. 

Every penny counts, so please donate where you can and thank you for taking the time to read!

Ed Mynard