Thanks for taking the time to read our story!

We are raising money for TOFS which is a registered, UK-based charity dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions.


Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that affect one in every 3,500 babies. (Just are luck!)


We are supporting this charity because this is something Sydney was diagnosed with on my 20 week scan. This meant Sydney couldn't swallow in my stomach and she grew of the placenta, I had a lot of fluid measuring 40 weeks when i was only 36 people would ask me if i was having twins!. she's a miracle the way she was able to survive in my womb!

She was born 3 weeks early by emergency C-section because her heart started dropping 11/05/2017 weighing 5 pound 5oz at 01:06am

She had to have surgery when only a few hours old to fit a gastrostomy in her stomach so we could feed her & a replogle tube down her nose or mouth to drain her saliva

Because sometimes the replogle tube got blocked or it wasn't getting flushed enough by the nurses Sydney ended up going blue 16 times because saliva would spill over her airways and she ended up in intensive care 3 times


So when she was 7 weeks old they decided to do Oesophagostomy in side of her neck were her saliva would drain from so no more tubes and plasters hiding her gorgeous face. we give her a bottle of milk and will be giving her baby food in November when shes 6 months which will come out her neck too, so she can learn to swallow and to get used to tastes and temperatures of foods for when she has her operation

She then had to have another operation when she was 11 weeks old to have a bigger gastrostomy fitted

We had to give Sydney 4 medicines a day but are now down to 2

With the condition Sydney has a bark cough which they call the "TOF cough" people look at you asif your out with a sick baby!

Sydney has the longer gap so we have to wait until shes 10 to 18 months when they will connect her back up

This condition will effect Sydney for the rest of her life she will be prone to choking, chest infections and reflux

After her connection she may need to have stretches were they will put her asleep and put a balloon down her throat and blow it up so food doesn't get stuck

She also has tracheomalacia with her airways so she sucks in on her neck and ribs its should get better as she gets older this means if she cries or something hurts her she will hold her breath and could stop breathing so we always try to keep her calm and have her feds on time haha 


we spent 7 weeks in alder hey hospital with many ups and downs when she was first born and still have to go for check ups. Before her diagnosis, like many people, we had never heard of tofs


ben has challenged himself to do a sky dive Sunday 19th November 2017 in support of this well deserving charity and also to raise awareness 


Please make a donation-every single bit of money raised will go a long way

Wish him luck!

Thank you 


Emily, Ben & Sydney Xxx

"She's our precious, special, brave, strong baby girl who is a inspiration & we couldn't imagine our life without her"