Baby Jake has a condition called albinism. Once the diagnosis came myself and husband found ourselves lost and in shock. We had no idea what this entailed and found the advice from the hospitals lacking. I believe the words were "search on the internet". I did search the Internet and what I found was some very good advice and helpful pages......I also found some horrific pages that were terrifying. Once I joined the Albinism Fellowship I found we were no longer alone. We have a great support group and I have some wonderful friends all in the same boat as myself and Jake has lots of little friends all with the same condition as him.  Thanks for taking the time to visit my JustGiving page.

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