Simon was passionate about Debra and its work supporting the children and families living with this incurable disease. From birth, these children are in agony, their skin blistering at the slightest touch. The charity supports the family emotionally and practically to make life as bearable as possible. Debra is funding research to find a cure for this genetic disorder, which can be dormant in the parent carriers and only discovered when their child is born. Imagine that was your child.

Simon contributed to the charity in many ways and in particular supporting their golf and shooting events where he introduced others to support the charity.