Mark Betts

GU36 Ultra Marathon

Fundraising for Galactosaemia Support Group
£720
raised of £500 target
by 16 supporters
Donations cannot currently be made to this page
Galactosaemia Support Group

Verified by JustGiving

RCN 1020167
We support galactosaemics and families to learn more about the genetic disease

Story

Hi all I am running an ultra marathon, which in this case is approx 36 miles, following the coastal path of Guernsey 🇬🇬. The instruction 'keep the sea on your left and keep going til you find the start again' is all the guidance you need.

Tbh I'm doing it because I love this stuff, but if I can raise a few quid for a great cause all the better.

As always I'm raising money for the Galactosaemia Support Group (GSG) . I'm sure you all know both Fin and Bode have Galactosaemia and the GSG provides loads of support to those with the condition and those who look after others with it. Recent research done by the GSG has hugely broadened the diet our boys can eat which is invaluable to their general health and well being not to mention making life more fun!

Any pennies you have spare would be massively welcome. Thanks in advance and big love xx

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About the charity

Galactosaemia Support Group

Verified by JustGiving

RCN 1020167
The Galactosaemia Support Group brings families with galactosaemic children and adult galactosaemics into contact with each other and offers support where most needed. Through the group the families are able to share experiences, help each other with problems and exchange information and ideas. We currently represent a wide cross section of members and their families and continue to forge links with a network of other associations. A key part of our approach is to promote awareness of galactosaemia within the medical and teaching professions, the food and pharmaceutical industries and the general public at large. The Group organises events, away days and weekend breaks together with bi-annual medical conferences and seminars. We also produce a wide range of literature and support material for members, in association with qualified dieticians, including newsletters and product updates.

Donation summary

Total raised
£720.00
+ £83.75 Gift Aid
Online donations
£720.00
Offline donations
£0.00

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