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Alkaptonuria is a rare genetic disease affecting one in every 250,000 people. Every AKU patient will experience joint pain, early onset of osteoarthritis and ultimately a decline in mobility.

Since 2015 I have been the gait analyst for the National Alkaptonuria Centre and part of the collaborative research team aiming to combat Alkaptonuria by advancements in treatment and relieving symptoms through clinical trials.

The NAC AKU patients come to the gait lab at LJMU annually, and without complaint and often through pain, they take several steps up and down the lab for their gait analysis report. My analysis and research could not be achieved without the perfect co-operation and patience that the AKU patients continually show!

So in return for all those steps taken in the lab for me over the past 2 years I will return that favour...step for step!

The money raised will go directly towards patient support, medical research and in particular patient workshops. These workshops are a chance for the researchers to directly update the patients on their research progress, a chance for the patients to ask questions and continue to establish the AKU community.  

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.