Hannah Shepherd
Hannah and Caroline Skydive in Memory of Jonny Edwards
Fundraising for The Marfan Trust
Story
💛💛 SATURDAY 16th OCTOBER 💛💛
Due to work being carried out at Swansea Airport not being completed on time, our Sky Dive on 24th July had been postponed. Our new date is Saturday 16th October 2021.
We would like to Thank You All who have shared our story so far and donated to our Just Giving page for The Marfan Trust in Memory of Jonny Edwards . It is really much appreciated ❤️❤️
We will still continue to share our story to raise awareness of Marfan Syndrome and will keep the Just Giving page open for as long as we can for those who still wish to donate for such a worthy cause.
Once again, We Thank You All from the bottom of our hearts for your continued support!
💙💛💙💛
Raising Awareness for Marfan Syndrome! ❤️❤️❤️
On Saturday 16th October Hannah Shepherd and Caroline McCarthy are doing a sky dive to raise both money and awareness about Marfan Syndrome. 🪂🛫
2 years ago, we lost Jonny Edwards, someone who was very close to our hearts and someone who had an infectious effect on everyone he met 💛
Jonny had a heart aneurysm: PRIOR TO THIS JONNY WAS FIT AND HEALTHY!
Had we heard of MARFAN SYNDROME we may have been able to join the dots and he would have had a heart scan and surgery.
He was tall and thin, his rib cage stuck out ( pigeon chest) , his toes curled, stretch marks on back, able to touch his wrist with his thumb, his wing spam was longer than his height.
Other symptoms are chronic pain, curved spine, flat feet, dislocated eyes.
Other symptoms are chronic pain, curved spine, flat feet, dislocated eyes.
We would like to support research into Inherited Aortic and Related Disorders.
If you would like to donate any money in supporting us with our Sky Dive please use the link that is next to Jonny’s photo.
And more importantly, use the link below to read about Marfans and the effects it can have. 📖
https://www.marfantrust.org/
https://www.nhs.uk/conditions/marfan-syndrome/
And more importantly, use the link below to read about Marfans and the effects it can have. 📖
https://www.nhs.uk/conditions/marfan-syndrome/
Thank You for taking time to read our story and helping us raise awareness as had we had known these simple signs things may have been so different.
Thank You Hannah and Caroline X❤️X