When we were finally told that dad had Sporadic Creutzfeldt-Jakob Disease (CJD) we were in total shock. I didn’t even know what it was until my mum said ‘it’s similar to mad cow disease’. I have since used the same term as hardly anyone knows what CJD is - there’s 1-2 cases per million people per year. I want to raise awareness of this disease and to change the stigma around it.

It is a savage disease that destroys the brain very quickly. Almost all diagnosed will die within 4 months of symptoms appearing. We had a month with my dad. 

The CJD Support Network is the only UK charity to specifically help people touched by the disease, and was mentioned to us by the researchers at the UK’s National CJD Surveillance Unit in Edinburgh as having helped fund their continued work in researching the disease, why it happens, and to hopefully one day help find a cure.

Please give all you can.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.