Story
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I am doing The Prudential Ride London, 100 miles through London and Surrey on the 30th July in aid of the Primary Ciliary Dyskinesia Family Support Group www.pcdsupport.org.uk
The reason I am doing this is that my daughter Olivia has Primary Ciliary Dyskinesia (PCD) which is a rare genetic lung condition.
People with PCD have faulty cilia which are microscopic hair like structures that have loads of functions within the human body. The main problems they cause are repeated chest infections, hearing problems, sinus problems and infertility.
Since Olivia was diagnosed last year she has had to do physiotherapy twice a day to help clear her lungs and regularly takes antibiotics to treat infections.
Recently also being admitted for 2 weeks into Nottinghams Queens Medical for intravenous antibiotics, which she dealt with as typical Olivia, smiley!
The PCD Support Group is a registered charity which provides support to parents with PCD and their families. They also help raise awareness of the condition to the medical profession and provide an up-to-date information service. They rely entirely on donations so any donations would be greatly appreciated.
Please can you sponsor me on www.justgiving.com/ Helen-bartholomew-pcd
Thank you!