Story
Ivor contracted Sarcoidosis (an autoimmune disease) in his lungs about 20 years ago. After his heart attack in December 2015, he was diagnosed with sarcoidosis of the heart. This led to a weak immune system and on/off ill health, which his body sadly couldn’t fight anymore.
Beverley, Sandra and Angela, would like to raise money for Sarcoidosis UK in Ivor’s memory, a charity which research in this rare illness (one in 10,000). If you wish to make a donation, please do so via this Just Giving page.
Sarcoidosis is an under-researched disease, affecting one in 10,000 people in the UK and a million around the world.
Sarcoidosis is an agonising, debilitating disease that can affect any part of the body. It often affects the lungs but can also target the skin, eyes, joints, nervous system, heart and other body parts. Patients can be affected in multiple organs.
Sarcoidosis is an under-researched disease with no cure. Patients have their symptoms treated with the hope that the disease goes into remission. However, in 20-30% of cases it becomes chronic and in up to 5% of cases is terminal.