Thanks for taking the time to visit my JustGiving page.

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn. Genetic but largely inherited Rett syndrome is usually caused by a fault on a gene called MECP2 which is found on the X chromosome. People with Rett syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.

I am trying to raise money for Rett UK. Rett UK supports our families through a national helpline, including telephone, email and social media support, co-ordinate Rett specialist clinics in conjunction with the NHS, organise local support groups, as well as regional days and have a dedicated parental contact network. We also provide training for people who are supporting someone with Rett syndrome whether that is in a school, college,  day centre, supported living, respite or residential setting.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.