Story
On the 7th November 2018, a little girl Lila had her world ended when her and her family were told that lovely Lila, aged 5, had a large and rare tumour in the middle of her brain. Almost 5 cm across at its widest point, the tumour is benign but is attached to various important structures. Lila will require lifelong hormone replacement therapy and her vision and her memory have also been affected by the tumour.
Lila has had one operation to reduce the pressure in her brain and to remove some of the tumour. It is now felt that the risks of further surgery outweigh the benefits and the safest option is for her to receive a course of proton beam radiotherapy.
Lila returns from the USA in April and all our thoughts from the UK are with her and her family. Mum and dad have had to give up work and dedicate their whole life to Lila and her all important treatment. We can only imagine what impact this terrible illness for Lila has caused both her and her parents and we want to help as much as we can financially, to reduce as much worry and stress as possible. It is important that all their strength and time is spent making Lila comfortable and life as enjoyable as possible under the dreadful circumstances they currently have to deal with !
Forward facing is an amazing charity that has helped alot of families make meaningful memories,have fun and offer support to all the family. Check out their website if you want to read more info www.forwardfacing.co.uk !
Hearing Lilas story we decided we really want to help to raise as much money as possible for her and her family. And also for Forward Facing,who have supported us as a family as our sister/daughter also has brain tumours and has had numerous treatments and surgeries.We really appreciate any donation possible!
We are getting our walk on and we will be giving it ago if you fancy it too contact luke at info@reptylers.co.uk
Thank you so much 🌟❤️