Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

My two sons Jake and Charley have this incurable genetic condition, Bardet Biedel Syndrome, they are losing their sight amongst other ailments of the condition, this is the one that seems to trouble them the most. The people who are involved in this charity are absolute saints and do not get enough recognition for all their hard work and dedication. Please help me to raise much needed funds to keep the clinics running and the annual conference going, because as you are only too aware, charities rely on public donations. 

Many thanks 

Jo