Jack was born with an extremely rare syndrome called Cornelia de Lange Syndrome. This syndrome can have a wide ranging effect and although Jack is doing well the hurdles he will face throughout his life will be challenging.

Because this syndrome is so rare most doctors and other medical staff have never heard of it which presents a whole range of issues when it comes to supporting him and us a family. The CdLS foundation provides support to effected families and organises an annual convention to provide subject matter experts to families that have been effected. Both Abby and I have found this support absolutely essential to be able to learn to live with CdLS.

Any donations and support would be greatly appreciated!

Josh, Abby, Mya & Jack

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