Story
In February 2021 my son Alex started to feel unwell, gradually developing the symptoms we now know are caused by Kawaski Disease (KD). A rare disease we had never heard of but we certainly have now!
That first week in February went from my son being ill, to fighting for his life, suffering severe heart complications due to the Kawaski Disease.
We could not have had a better care team in the West Suffolk Hospital and the specialist care at the Evelina in London, without which Alex would not be here today.
Still not enough is known about KD, it can't be prevented (YET!) and it can't be cured (YET!). Alex unfortunately suffered one of the worst effects in that he is left with 2 large aneurisms on his heart and will now be medicated, monitored and have his life changed for ever.
BUT we are lucky, he is still here with us and still strong. Myself and my best friend Isaac are challenging ourselves this year with a half marathon - and we are doing it to raise awareness of Kawaski Disease and funds for Societi - The UK Kawaski Disease Foundation. Please support us and give anything you can! It will push us over that finish line and Alex, with his big smile, will be there to cheer us on.
Thank you for reading (and donating :))
Justin & Isaac
xx